Table 2.
Factors Associated with Willingness to Participate in Research
Demographics and patient characteristics | P-value | Motivators and barriers | P-value | Research approach factors | P-value |
Sex | 1.00 | Research helps my child | 0.68 | Number of times approached | 0.01 |
Race | 0.20 | Research helps other children | 1.00 | Number of studies approached about | < 0.0001 |
Ethnicity | 0.56 | Research is low risk | 1.00 | Approached about too many studies | 0.73 |
Language | 1.00 | Research is not burdensome | 1.00 | Approached about the right number of studies | 0.23 |
Marital status | 1.00 | Research offers incentive | 1.00 | Approached about too few studies | 0.96 |
Age | 0.48 | Doctor wanted me to do it | 1.00 | Approached too often | 0.64 |
Educational level | 0.78 | Child wanted to do it | 1.00 | Approached the right number of times | 0.25 |
Length of stay | 0.59 | Risk to child | 1.00 | Not approached enough | 0.90 |
Acute stress score | 0.20 | Burden to child | 1.00 | Approached too soon after admission | 0.25 |
Knowledge of PICU team | 0.21 | Not enough time | 0.57 | Approached at the right time | 0.91 |
Previous PICU admission | 0.31 | Research not explained well | 0.06 | Approached too close to discharge | 0.79 |
PICU interventions | 1.00 | Feeling overwhelmed | 1.00 | Felt respected in approach | 0.25 |
Prior research participation | 0.08 | Child is too sick | 0.53 | Had ample opportunity to decide | 0.35 |
Time commitment of prior research | 0.28 | Family does not want | Felt rushed to decide | 0.72 | |
Could not do more | 0.23 | Felt pressured to decide | 0.58 | ||
Too many studies | 0.40 | ||||
Lack of incentive | 0.18 |