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. Author manuscript; available in PMC: 2023 Jul 10.
Published in final edited form as: Ethics Hum Res. 2019 May;41(3):2–12. doi: 10.1002/eahr.500014

Table 2.

Factors Associated with Willingness to Participate in Research

Demographics and patient characteristics P-value Motivators and barriers P-value Research approach factors P-value
Sex 1.00 Research helps my child 0.68 Number of times approached 0.01
Race 0.20 Research helps other children 1.00 Number of studies approached about < 0.0001
Ethnicity 0.56 Research is low risk 1.00 Approached about too many studies 0.73
Language 1.00 Research is not burdensome 1.00 Approached about the right number of studies 0.23
Marital status 1.00 Research offers incentive 1.00 Approached about too few studies 0.96
Age 0.48 Doctor wanted me to do it 1.00 Approached too often 0.64
Educational level 0.78 Child wanted to do it 1.00 Approached the right number of times 0.25
Length of stay 0.59 Risk to child 1.00 Not approached enough 0.90
Acute stress score 0.20 Burden to child 1.00 Approached too soon after admission 0.25
Knowledge of PICU team 0.21 Not enough time 0.57 Approached at the right time 0.91
Previous PICU admission 0.31 Research not explained well 0.06 Approached too close to discharge 0.79
PICU interventions 1.00 Feeling overwhelmed 1.00 Felt respected in approach 0.25
Prior research participation 0.08 Child is too sick 0.53 Had ample opportunity to decide 0.35
Time commitment of prior research 0.28 Family does not want Felt rushed to decide 0.72
Could not do more 0.23 Felt pressured to decide 0.58
Too many studies 0.40
Lack of incentive 0.18