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. 2023 Feb 15;6:e39988. doi: 10.2196/39988

Table 3.

Representative quotes regarding patient perception of treatment success and satisfaction.

Theme Quote
Convenience of treatment
  • I do remember they were saying a lot of it was pre-cancer. And that's what this particular drug was supposed to do, so you know, deal with. So it was it was sort of, I had to do something that was difficult. And so how I felt about it. [Pt #2]

  • Well, generally I felt great, because I didn't you know, this was is like putting a Band-Aid on and you got some underneath the Band-Aid that hurts real bad. And you do everything you got to do you just keep doing it. You know it didn't inhibit anything that I did at all. Because I just got going I wouldn’t let it slow down the things I had to do. [Pt #4]

  • Like crap. That would be the mental side, the physical side, not so bad. [Pt #7]

  • It wasn't... let’s put it this way it was a minor annoyance. And at times you, by focusing on other things in life I didn't even really pay much attention. [Pt #8]

Perception of treatment effectiveness
  • Short answer, no. The full answer is somewhat partially in some areas, like my neck is significantly improved over what it was. And there's very small areas there. Down my chest on either side of my sternum, on the left side, there's very little, but there's a rim that that runs probably a four inch line with little very small spots of it left. On the right side there are larger spots over a wider area, and the area below my breasts at the bottom of my sternum on the right hand side there's a fairly significant area that's kind of appeared afterwards. [Pt #4]

  • Yes, it definitely works. It's just a question of whether that is the best solution. [Pt #7]

  • It only provided very, very short-term results and would need to have to be repeated frequently. [Pt #8]

  • It's 50/50. It's as much as you can take, because it ends up...you're going to have to do something. So either I took as much as I could and I said you know whatever's next I have to take next because I couldn't finish. [Pt #9]

Patient satisfaction with treatment
  • In the long run, of course, I'm happy that the doctor seems to believe that it helped, and I trust doctors, you know. [Pt #2]

  • Well, the positive effects were that it treated the cancer. I mean, for me it's hard though because I wore glasses. On my face and anywhere my glasses touched, I had to wear like a like a napkin, on my nose bridge. And I mean, putting it on every day and wash my face and there's a constant burning that goes with it that kind of affects your behavior just by your attitude. You kind of like get tired of that burning. And then it starts swelling and you can't move your face from the people staring at you and everything else. It's a, I mean it’s a process. You know? It's a difficult process to go through. [Pt #9]

Likelihood to seek future treatment
  • Well, of course, I'd be willing to this I was told that the side effects were much more minimal. Then the ones in the fluorouracil. I’m not interested in going through that again. [Pt #4]

  • I think if a dermatologist recommended another way of treating it, I would definitely look into other ways, yes. [Pt #5]

  • I would consider it depending on the ease of use, as well as a discussion about effectiveness. [Pt #8]

  • I said yes, I would be willing to try after consulting with my doctor. But if it’s going to do the same thing the other cream done, I'm not interested. [Pt #10]