TABLE 1.

Demographic findings of the PPHNet Registry cohort by primary World Symposium on Pulmonary Hypertension (WSPH) group

	Overall (n=1475)	WSPH group					p-value
		Group 1 (n=663)	Group 2 (n=54)	Group 3 (n=720)	Group 4 (n=8)	Group 5 (n=30)
Site							<0.001
Colorado	222 (15)	92 (14)	2 (4)	123 (17)	0 (0)	5 (17)
Alberta	94 (6)	58 (9)	6 (11)	28 (4)	1 (13)	1 (3)
Stanford	101 (7)	61 (9)	6 (11)	34 (5)	0 (0)	0 (0)
Boston	286 (19)	90 (14)	10 (19)	178 (25)	2 (25)	6 (20)
UCSF	111 (8)	58 (9)	2 (4)	47 (7)	2 (25)	2 (7)
CHOP	260 (18)	109 (16)	7 (13)	139 (19)	1 (13)	4 (13)
Vanderbilt	139 (9)	50 (8)	5 (9)	75 (10)	2 (2)	7 (23)
Columbia	262 (18)	145 (22)	16 (30)	96 (13)	0 (0)	5 (17)
Male	758 (51)	296 (45)	31 (57)	413 (57)	3 (38)	15 (50)	<0.001
Age at diagnosis, years
Mean±SD	2.9±4.7	4.3±5.4	4.3±5.6	1.1±2.8	14.2±5.8	6.3±6.3	<0.001
Median (IQR)	0.5 (0.1–3.6)	1.5 (0.3–6.9)	1.4 (0.5–5.8)	0.3 (0.0–0.6)	16.0 (14.8–17.1)	4.4 (0.4–12.1)	<0.001
Hispanic							0.24
Yes	235 (16)	115 (17)	8 (15)	108 (15)	1 (13)	3 (10)
No/Unknown	1240 (84)	548 (73)	46 (85)	612 (85)	7 (88)	27 (90)
Race group							<0.001
White	899 (61)	400 (60)	36 (67)	444 (62)	4 (50)	15 (50)
Black	191 (13)	66 (10)	6 (11)	105 (15)	3 (38)	11 (37)
Asian	135 (9)	84 (13)	3 (6)	45 (6)	0 (0)	3 (10)
Other/Unknown	250 (17)	113 (17)	9 (17)	126 (18)	1 (13)	1 (3)

Data are presented as n (%), unless otherwise stated; column percentages for each characteristic total 100%. UCSF: University of California San Francisco; CHOP: Children’s Hospital of Philadelphia. The p-value tests equality of the distributions of each characteristic between Group 1 and Group 3 (p<0.05 is significant).