Table 1.
Population characteristics at the interview. Key to the table: All values refer to the person affected with SMA.
| Caregiver (n = 150) | Patients (n = 45) | |||||
|---|---|---|---|---|---|---|
| All | Adult (n = 72 ) | Pediatric (n = 78) | All | Adult (n = 33) | Pediatric (n = 12) | |
| Patient’s age (years) 1 | 3–71 (20.18; 14.24) |
18–71 (31.11; 13.32) |
3–17 (10.08; 3.77) |
14–62 (24.09; 10.22) |
18–62 (27.18; 10.31) |
14–17 (15.58; 0.99) |
| Gender 2 | 82 F (54.66%) 68 M (45.33%) |
40 F (55.55%) 32 M (44.44%) |
42 F (53.84%) 36 M (46.15%) |
26 F (57.77%) 19 M (42.22%) |
18 F (54.54%) 15 M (45.45%) |
8 F (66.66%) 4 M (33.33%) |
| Sma Type 2 | ||||||
| Sma Type II | 90 (60.00%) | 36 (50%) | 54 (69.23%) | 24 (53.33%) | 17 (51.51%) | 7 (58.33%) |
| Ambulant | 0 (0.00%) | 0 (0.00%) | 0 (0.00%) | 0 (0.00%) | 0 (0.00%) | 0 (0.00%) |
| Non Ambulant | 90 (100.00%) | 36 (100.00%) | 54 (100.00%) | 24 (100.00%) | 17 (100%) | 7 (100.00%) |
| Sma Type III | 60 (40.00%) | 36 (50%) | 24 (30.76%) | 21 (46.66%) | 16 (48.48%) | 5 (41.66%) |
| Ambulant | 26 (43.33%) | 11 (30.55%) | 15 (62.5%) | 13 (61.90%) | 11 (68.75%) | 2 (40%) |
| Non Ambulant | 34 (56.66%) | 25 (69.44%) | 9 (37.5%) | 8 (38.09%) | 5 (31.25%) | 3 (60%) |
All values refer to the person affected with SMA. 1 Range (mean; standard deviation), 2 N (%); F = Female, M = Male.