Table 4.
Population characteristics at the time of the interview subdivided by the year of the questionnaire’s collection.
| Caregiver 2016 (n = 139) | Caregiver 2022 (n = 78) | |
|---|---|---|
| Age 1 | 1.5–17 y (7.38; 3.86) | 3 y–17 y (10.08; 3.77) |
| Gender 2 | 63 F (45.32%) 76 M (54.67%) |
43 F (55.10%) 35 M (44.87%) |
| SMA Type 2 | ||
| SMA Type II | 103 (74.10%) | 54 (69.23%) |
| SMA Type III | 36 (25.89%) | 24 (30.76%) |
| Ambulant | 30 (83.33%) | 15 (62.50%) |
| Non ambulant | 6 (16.66%) | 9 (37.50%) |
All values refer to the person affected by SMA. 1 Range (mean; standard deviation), 2 N (%); F = Female, M = Male.