Table 2.
System characteristics
System characteristic/feature *multiple response options total ≠ 100% | Number n=10 (skipped response) | Response % |
System launched | (0) | |
In development | 1 | 10% |
<1 year | 1 | 10% |
1–5 years | 5 | 50% |
>5 years | 3 | 30% |
Primary objective of system* | (0) | |
Improving symptom assoc with CKD | 7 | 70% |
Improving symptom assoc with treatment | 5 | 50% |
Psychosocial care | 0 | 0% |
Facilitate communication | 4 | 40% |
Research | 3 | 30% |
Benchmarking | 0 | 0% |
Commissioning | 0 | 0% |
Support transition of care | 0 | 0% |
Secondary objective of system* | (0) | |
Improving symptom assoc CKD | 2 | 20% |
Improving symptom assoc treatment | 4 | 40% |
Psychosocial care | 8 | 80% |
Facilitate communication | 6 | 60% |
Research | 4 | 40% |
Benchmarking | 2 | 20% |
Commissioning | 1 | 10% |
Support transition of care | 2 | 20% |
Academic | (0) | |
Charitable | 5 | 50% |
Government | 4 | 40% |
How developed? | 1 | 10% |
In-house informatics team | (0) | |
Collaboration across sectors | 1 | 10.0% |
Commercial product | 4 | 40.0% |
Funding source* | 3 | 30.0% |
Commercial | 3 | 30.0% |
Primary location of use* | (0) | |
Primary care (community/general practice clinic) | 10.0% | 1 |
Secondary care (hospital clinic) | 80.0% | 8 |
Dialysis centre | 60.0% | 6 |
Home | 20.0% | 2 |
System platform* | (0) | |
Non-responsive website | 2 | 20.0% |
Responsive/mobile website | 8 | 80.0% |
Mobile application | 2 | 20.0% |
System access* | (0) | |
Computer | 7 | 70.0% |
Tablet | 10 | 100.0% |
Interactive voice response system | 0 | 0.0% |
Clinic-based kiosk | 2 | 20.0% |
Smartphone | 7 | 70.0% |
PRO selection* | (2) | |
Automatic (by system) that is, provider | 8 | 100% |
By patient | 0 | 0.0% |
System security features* | (1) | |
Secure log in | 9 | 100.0 |
Encryption | 7 | 77.8% |
Two factor log in | 1 | 11.1% |
Unsure | 1 | 11.1% |
Page features* | (1) | |
Progress bar | 6 | 66.7% |
Visual graphics that is, graph, diagram, chart | 4 | 44.4% |
Automatic save function, option to save and return later | 1 | 11.1% |
Training available | (0) | |
Yes | 9 | 90% |
No | 1 | 10% |
Who receives training?* | (1) | |
Clinical staff | 9 | 100.0% |
Administrative staff | 4 | 44.4% |
Patients | 7 | 77.8% |
Carers | 0 | 0.0% |
Form of ePRO system training* | (1) | |
Face to face | 7 | 77.8% |
Online | 7 | 77.8% |
Integrated into ePRO system | 2 | 22.2% |
Facility for patient education* | (2) | |
Administered in system | 4 | 50.0% |
Education linked to ePRO scores | 1 | 12.5% |
Automatic documentation of action | 0 | 0.0% |
No patient education offered | 4 | 50.0% |
In development | 1 | 12.5% |
Has the system been evaluated? | (0) | |
Yes | 7 | 70% |
No | 3 | 30% |
CKD, chronic kidney disease; ePRO, electronic patient-reported outcome.