Table 1.
Characteristics of included studies.
References | Country | Study design | Service type | Population served | Study objective | Method of involvement | Outputs reported |
---|---|---|---|---|---|---|---|
Pocobello et al. 18 | Italy | Mixed methods study Qualitative focus groups and quantitative cross‐sectional study. | Coproduced community mental health day centre which organises activities, support groups and so on. | Members with lived experiences of mental health issues. | Investigate the differences between a co‐produced experimental mental health centre and traditional day centres. | Open meetings are held twice a week in which service users and staff discuss and organise the management of the centre. | Difference in hospitalisation rates and use of psychiatric medication. Focus group quotes. |
Palmer et al. 19 | Australia | Randomised controlled trial, cluster design involving four mental health organisations, patient involvement implemented in nine teams. | Psychosocial recovery‐oriented Mental Health Community Support Services (MHCSS). | People with long‐term psychosocial impairments because of mental illness. | Investigate the impact of experience‐based co‐design (EBCD) of mental health services on psychosocial recovery. | EBCD involves interviews/focus groups with service users. Collaboration in determining priorities and action plans. | Questionnaire (Revised recovery assessment scale—RASR) to measure psychosocial recovery Quality of life (UROHIS‐QoL eight‐item index). |
Usman et al. 20 | Ireland | Mixed methods questionnaire. | The Psychiatry of Later Life (POLL) community‐based service. | Aged >65 years with mental health difficulties and dementia patients with behavioural disturbance or psychiatric symptoms. | To obtain the views of service users regarding the service and address issues identified. | Audit of service users' views via questionnaire. A cycle of improvements is done after each audit. | Patient satisfaction and user comments regarding service. |
Livingston et al. 21 | Canada | Mixed methods study. Quantitative and qualitative data were gathered from service users twice during the 19‐month patient involvement scheme. | Forensic mental health hospital. | Forensic mental health hospital inpatients. | To increase patient engagement by strengthening a patient advisory committee (PAC) and determine what effects this has on perceived service improvements. | PAC: Monthly meetings of patients and staff to discuss hospital‐wide issues and concerns. | Improvements in patient engagement, valuing patient preferences and service user comments. |
Wang et al. 22 | Canada | Quantitative descriptive study—data collected by clinicians (including questionnaires) extracted from clinic databases. | Youth Wellness Centre (YWC) provides mental health and addiction services. | Emerging adults aged 17–25. | To evaluate how well the YWC is serving populations. | Preferences of service users collected and incorporated into service design. Implementing a youth council to maintain ongoing involvement. | Number of new clients, satisfaction scores, attendance rates and referral methods. |
Lwembe et al. 23 | United Kingdom | Qualitative study, interviews and focus groups. | Improving access to psychological therapies (IAPT) service. | Black and minority ethnic (BME) communities. | Evaluate a pilot‐coproduced mental health IAPT service to meet the needs of the BME communities. | Staff and patients co‐designed and co‐delivered IAPT services to BME communities using the principles of co‐production | Treatment completion rate and interview quotes. |
Springham and Robert 24 | United Kingdom | Quantitative descriptive. | Hospital acute mental health triage ward. | Ward patients | To see if using EBCD to redesign procedures and address issues would reduce formal complaints. | Gather patient experiences through narrative‐based interviews. Staff and patients identify priorities and co‐design solutions. | Formal complaints regarding the ward. |
Parkes et al. 25 | United Kingdom | Qualitative study interviews—two phases—one before and one after the new service is introduced. | Psychiatric wards | People with learning disabilities require an acute psychiatric admission. | To incorporate the views of service users in the development of an integrated psychiatric service for people with learning disabilities. | Interviews with service users. | Qualitative quotes. |
Illback and colleagues 15 , 16 , 17 | Ireland | Quantitative descriptive. | Jigsaw: Provides early access care for young people with mild‐to‐moderate issues with mental health. Aims to fill the gap and ensure continuity of care for youth. | Young people aged 12–25. | To make current services more accessible by engaging communities in planning, design and implementation. Moreover, to determine whether this reduces psychological distress. | Service planning team meetings consisted of young people and staff. Focus groups with young people. Implementation of a youth advisory panel to inform service delivery. | Psychological distress, referral methods and client demographics. |