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. Author manuscript; available in PMC: 2023 Jul 15.
Published in final edited form as: J Genet Couns. 2023 Jan 16;32(2):435–461. doi: 10.1002/jgc4.1653

TABLE 4.

Questions to Inform RTGT Decisions

Questions to consider prior to any research or clinical use of
genetic testing
Relevant Facilitators Relevant Barriers
How will testing decisions be made? Who will be involved? What information will be provided to inform such decisions and by whom? Personal control; Communication Individual Benefit; Communication and Information Needs
How will individual test results be shared and by whom? What information will be provided? Communication Communication and Information Needs; Clinicians' Concerns
Who will decide how results are used? How will that decision be made? Personal Control Harm; Trust
Who will have access to results and how will that be determined? Personal Control Confidentiality; Harm; Trust; Clinicians' Concerns
What information will be collected to evaluate practices? How will it be assessed and by whom? Individual Benefit; Population or Community Benefit Harm; Trust
Questions to consider prior to adopting RTGT Relevant Facilitators Relevant Barriers
Why are we considering RTGT? How will we justify and explain it? Communication Trust; Communication and Information Needs
What alternatives to RTGT exist? What advantages and disadvantages do they pose relative to RTGT? Will targeting by race explicitly undermine participation? Individual Benefit; Population or Community Benefit Harm; Trust; Race; Communication and Information Needs; Clinicians' Concerns
What do we mean by the term “race”? Race
Who counts as a member of the racial group targeted and why? How are mixed race people classified? Race
How will members of the group be identified and why? Race