TABLE 4.
Questions to Inform RTGT Decisions
| Questions to consider prior to any research or clinical use of genetic testing |
Relevant Facilitators | Relevant Barriers |
|---|---|---|
| How will testing decisions be made? Who will be involved? What information will be provided to inform such decisions and by whom? | Personal control; Communication | Individual Benefit; Communication and Information Needs |
| How will individual test results be shared and by whom? What information will be provided? | Communication | Communication and Information Needs; Clinicians' Concerns |
| Who will decide how results are used? How will that decision be made? | Personal Control | Harm; Trust |
| Who will have access to results and how will that be determined? | Personal Control | Confidentiality; Harm; Trust; Clinicians' Concerns |
| What information will be collected to evaluate practices? How will it be assessed and by whom? | Individual Benefit; Population or Community Benefit | Harm; Trust |
| Questions to consider prior to adopting RTGT | Relevant Facilitators | Relevant Barriers |
| Why are we considering RTGT? How will we justify and explain it? | Communication | Trust; Communication and Information Needs |
| What alternatives to RTGT exist? What advantages and disadvantages do they pose relative to RTGT? Will targeting by race explicitly undermine participation? | Individual Benefit; Population or Community Benefit | Harm; Trust; Race; Communication and Information Needs; Clinicians' Concerns |
| What do we mean by the term “race”? | Race | |
| Who counts as a member of the racial group targeted and why? How are mixed race people classified? | Race | |
| How will members of the group be identified and why? | Race |