Table 7.

Impacts of health service delivery and care on parents

	Impact on parents
Domain of health service delivery & care	Emotional wellbeing	Ability to parent child in way they want	Trust in staff	Care burden	Empowerment & control	Understanding of situation being faced	Partnership (versus conflict) with staff	Maintenance of usual family routine	At ease with (versus regretting) treatment & care decisions	Satisfaction with treatment & care	Sense of hope	Physical wellbeing
STAFF ACTIONS
Sharing medical information & decision making	✓	✓	✓	✓	✓	✓	✓		✓	✓	✓
Management of child’s condition	✓	✓	✓	✓	✓	✓	✓	✓
Supporting coping	✓	✓	✓				✓			✓	✓
Supporting parenting during inpatient stays	✓	✓	✓	✓	✓			✓	✓
ORGANISATIONAL FEATURES
Physical environment during inpatient stays	✓	✓						✓				✓
Continuity & coordination of care	✓	✓	✓	✓
Access to additional support	✓	✓		✓