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. Author manuscript; available in PMC: 2025 Apr 1.
Published in final edited form as: Disabil Rehabil Assist Technol. 2022 Nov 20;19(3):1041–1051. doi: 10.1080/17483107.2022.2146217

Table 1.

Interview Cohort Participant Information

ID Age Diagnosis Sex Education
(Years)
Occupation Familiarity
with computers
ALS-
SSSa
TICS-mb
I-01 67 PD M 16 engineer expert user 10 39
I-02 58 ALS M 16 sales professional expert user 9 35
I-03 63 ALS M 14 engineer expert user 9 35
I-04 59 MS M 17 journalist expert user 9 35
I-05 59 SMA M 14 IT professional expert user 9 38
I-06 71 MS, PD F 13 clerical work some familiarity 9 37
I-07 52 MS F 20 professor some familiarity 9 40
I-08 73 ALS M 18 editor, monk some familiarity 7 41
I-09 61 ALS M 16 engineer expert user 9 40
I-10 59 PLS F 17 real estate broker; teacher some familiarity 9 35
I-11 59 MS F 24 doctor expert user 10 41
I-12 61 ALS F 16 teacher some familiarity 9 33
I-13 55 ALS M 18 teacher some familiarity 7 38
I-14 59 ALS F 14 lab technician expert user 4 26
I-15 72 MSA F 20 teacher expert user 8 35

Note. I =Interview Respondent, PD = Parkinson’s disease, ALS = Amyotrophic Lateral Sclerosis, MS = Multiple Sclerosis, SMA = Spinal Muscular Atrophy, PLS = Primary Lateral Sclerosis, MSA = Multiple Systems Atrophy, ALS-FRS = ALS Functional Rating Scale, ALS-SS = ALS Severity Scale, TICS-m = Telephone Interview of Cognitive Status – modified.

a

This assessment has a range of 0-10 points.

b

This assessment has a range of 0-50 points.