Table 1.
Interview Cohort Participant Information
| ID | Age | Diagnosis | Sex | Education (Years) |
Occupation | Familiarity with computers |
ALS- SSSa |
TICS-mb |
|---|---|---|---|---|---|---|---|---|
| I-01 | 67 | PD | M | 16 | engineer | expert user | 10 | 39 |
| I-02 | 58 | ALS | M | 16 | sales professional | expert user | 9 | 35 |
| I-03 | 63 | ALS | M | 14 | engineer | expert user | 9 | 35 |
| I-04 | 59 | MS | M | 17 | journalist | expert user | 9 | 35 |
| I-05 | 59 | SMA | M | 14 | IT professional | expert user | 9 | 38 |
| I-06 | 71 | MS, PD | F | 13 | clerical work | some familiarity | 9 | 37 |
| I-07 | 52 | MS | F | 20 | professor | some familiarity | 9 | 40 |
| I-08 | 73 | ALS | M | 18 | editor, monk | some familiarity | 7 | 41 |
| I-09 | 61 | ALS | M | 16 | engineer | expert user | 9 | 40 |
| I-10 | 59 | PLS | F | 17 | real estate broker; teacher | some familiarity | 9 | 35 |
| I-11 | 59 | MS | F | 24 | doctor | expert user | 10 | 41 |
| I-12 | 61 | ALS | F | 16 | teacher | some familiarity | 9 | 33 |
| I-13 | 55 | ALS | M | 18 | teacher | some familiarity | 7 | 38 |
| I-14 | 59 | ALS | F | 14 | lab technician | expert user | 4 | 26 |
| I-15 | 72 | MSA | F | 20 | teacher | expert user | 8 | 35 |
Note. I =Interview Respondent, PD = Parkinson’s disease, ALS = Amyotrophic Lateral Sclerosis, MS = Multiple Sclerosis, SMA = Spinal Muscular Atrophy, PLS = Primary Lateral Sclerosis, MSA = Multiple Systems Atrophy, ALS-FRS = ALS Functional Rating Scale, ALS-SS = ALS Severity Scale, TICS-m = Telephone Interview of Cognitive Status – modified.
This assessment has a range of 0-10 points.
This assessment has a range of 0-50 points.