Table 2.
Survey Cohort Participant Information
ID | Age | Diagnosis | Sex | Education (Years) |
Occupation | Familiarity with computers |
ALS- SSa |
Cognitive screeningb |
---|---|---|---|---|---|---|---|---|
S-01 | 80 | ALS/PLS | F | 13 | bookkeeper | some familiarity | 4 | 10 |
S-02 | 53 | ALS | F | 13 | medical technician | some familiarity | 4 | 10 |
S-03 | 77 | PD | F | 17 | marketing/PR specialist | expert user | 9 | 10 |
S-04 | 43 | MS | F | 18 | fire fighter/paramedic | expert user | 9 | 10 |
S-05 | 45 | PD | F | 17 | teacher | expert user | 10 | 10 |
S-06 | 45 | MS | F | 15 | child care provider | expert user | 8 | 10 |
S-07 | 57 | MS | F | 12 | instructional aide | some familiarity | 9 | 9 |
S-08 | 66 | PD | F | 14 | artist | some familiarity | 9 | 10 |
S-09 | 43 | MS | F | 16 | office support specialist | expert user | 10 | 10 |
S-10 | 58 | ALS | M | 14 | engineer | expert user | 0 | 9 |
S-11 | 35 | MS | F | 16 | scheduler, copy editor | expert user | 10 | 10 |
S-12 | 59 | PD | F | 19 | teacher | expert user | 8 | 10 |
S-13 | 62 | PD | M | 16 | engineer | expert user | 6 | 10 |
S-14 | 71 | PD | F | 20 | scientist, attorney | some familiarity | 10 | 10 |
S-15 | 42 | MS | F | 14 | healthcare provider | expert user | 10 | 10 |
S-16 | 39 | PLS | F | 16 | property manager | expert user | 5 | 10 |
S-17 | 48 | ALS | M | 14 | landscaper | some familiarity | 4 | 9 |
S-18 | 55 | SMA | M | 16 | IT support | expert | 4 | 9 |
S-19 | 47 | ALS | M | 20 | scientist | expert user | 4 | 7 |
S-20 | 73 | ALS | F | 15 | nurse | some familiarity | 7 | 9 |
S-21 | 56 | ALS | M | 13 | HVAC technician | some familiarity | 6 | 10 |
S-22 | 78 | ALS | M | 16 | professor | expert user | 9 | 9 |
S-23 | 69 | ALS | M | 16 | project manager | some familiarity | 4 | 10 |
S-24 | 79 | PD | F | 14 | homemaker | some familiarity | 9 | 9 |
S-25 | 73 | PD | F | 18 | teacher | some familiarity | 8 | 10 |
S-26 | 57 | MS | F | 14 | medical assistant | some familiarity | 10 | 9 |
S-27 | 67 | PD | M | 16 | technology sales rep | unreported | 9 | 10 |
S-28 | 62 | MS | F | 20 | attorney | some familiarity | 10 | 9 |
S-29 | 60 | MS | F | 12 | retired | some familiarity | 7 | 10 |
S-30 | 70 | PD | F | 17 | manager | some familiarity | 10 | 10 |
S-31 | 65 | MS | M | 16 | grant manager | some familiarity | 8 | 10 |
S-32 | 36 | MS | F | 12 | administrative assistant | some familiarity | 10 | 8 |
S-33 | 48 | PD | F | 21 | dentist | expert user | 10 | 10 |
S-34 | 79 | PD | M | 16 | service technician | some familiarity | 8 | 10 |
S-35 | 64 | MS | F | 17 | dental hygienist | some familiarity | 8 | 10 |
S-36 | 47 | MS | F | 18 | editor | expert user | 10 | 10 |
S-37 | 62 | MS | F | 14 | credit analyst | expert user | 8 | 10 |
S-38 | 73 | PD | F | 16 | teacher | some familiarity | 10 | 9 |
S-39 | 46 | MS | F | 14 | truck driver | some familiarity | 10 | 9 |
S-40 | 70 | MSA | M | 22 | engineer | some familiarity | 5 | 9 |
S-41 | 72 | PD | F | 16 | billing clerk | some familiarity | 8 | 10 |
S-42 | 75 | ALS | M | 23 | professor | some familiarity | 5 | 10 |
S-43 | 77 | PD | M | 16 | teacher | some familiarity | 6 | 8 |
S-44 | 69 | PD | F | 12 | bookkeeper | expert user | 8 | 9 |
S-45 | 35 | MS | other | 16 | parent | expert user | 9 | 10 |
S-46 | 72 | PD | F | 18 | physical therapist | some familiarity | 9 | 10 |
S-47 | 50 | MS | M | 16 | researcher | expert user | 8 | 10 |
S-48 | 61 | MS | F | 19 | teacher | expert user | 10 | 10 |
S-49 | 55 | MS | F | 12 | dispatcher | some familiarity | 9 | 10 |
S-50 | 43 | MS | M | 16 | graphic designer | some familiarity | 8 | 10 |
S-51 | 71 | PD | F | 18 | nurse practitioner | some familiarity | 10 | 10 |
Note. S= Survey Respondent, PD = Parkinson’s disease, ALS = Amyotrophic Lateral Sclerosis, MS = Multiple Sclerosis, SMA = Spinal Muscular Atrophy, PLS = Primary Lateral Sclerosis, MSA = Multiple Systems Atrophy, ALS-SS = ALS Severity Scale
This assessment has a range of 0-10 points.
This online assessment has a range of 0-10 points.