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. Author manuscript; available in PMC: 2025 Apr 1.
Published in final edited form as: Disabil Rehabil Assist Technol. 2022 Nov 20;19(3):1041–1051. doi: 10.1080/17483107.2022.2146217

Table 2.

Survey Cohort Participant Information

ID Age Diagnosis Sex Education
(Years)
Occupation Familiarity
with computers
ALS-
SSa
Cognitive
screeningb
S-01 80 ALS/PLS F 13 bookkeeper some familiarity 4 10
S-02 53 ALS F 13 medical technician some familiarity 4 10
S-03 77 PD F 17 marketing/PR specialist expert user 9 10
S-04 43 MS F 18 fire fighter/paramedic expert user 9 10
S-05 45 PD F 17 teacher expert user 10 10
S-06 45 MS F 15 child care provider expert user 8 10
S-07 57 MS F 12 instructional aide some familiarity 9 9
S-08 66 PD F 14 artist some familiarity 9 10
S-09 43 MS F 16 office support specialist expert user 10 10
S-10 58 ALS M 14 engineer expert user 0 9
S-11 35 MS F 16 scheduler, copy editor expert user 10 10
S-12 59 PD F 19 teacher expert user 8 10
S-13 62 PD M 16 engineer expert user 6 10
S-14 71 PD F 20 scientist, attorney some familiarity 10 10
S-15 42 MS F 14 healthcare provider expert user 10 10
S-16 39 PLS F 16 property manager expert user 5 10
S-17 48 ALS M 14 landscaper some familiarity 4 9
S-18 55 SMA M 16 IT support expert 4 9
S-19 47 ALS M 20 scientist expert user 4 7
S-20 73 ALS F 15 nurse some familiarity 7 9
S-21 56 ALS M 13 HVAC technician some familiarity 6 10
S-22 78 ALS M 16 professor expert user 9 9
S-23 69 ALS M 16 project manager some familiarity 4 10
S-24 79 PD F 14 homemaker some familiarity 9 9
S-25 73 PD F 18 teacher some familiarity 8 10
S-26 57 MS F 14 medical assistant some familiarity 10 9
S-27 67 PD M 16 technology sales rep unreported 9 10
S-28 62 MS F 20 attorney some familiarity 10 9
S-29 60 MS F 12 retired some familiarity 7 10
S-30 70 PD F 17 manager some familiarity 10 10
S-31 65 MS M 16 grant manager some familiarity 8 10
S-32 36 MS F 12 administrative assistant some familiarity 10 8
S-33 48 PD F 21 dentist expert user 10 10
S-34 79 PD M 16 service technician some familiarity 8 10
S-35 64 MS F 17 dental hygienist some familiarity 8 10
S-36 47 MS F 18 editor expert user 10 10
S-37 62 MS F 14 credit analyst expert user 8 10
S-38 73 PD F 16 teacher some familiarity 10 9
S-39 46 MS F 14 truck driver some familiarity 10 9
S-40 70 MSA M 22 engineer some familiarity 5 9
S-41 72 PD F 16 billing clerk some familiarity 8 10
S-42 75 ALS M 23 professor some familiarity 5 10
S-43 77 PD M 16 teacher some familiarity 6 8
S-44 69 PD F 12 bookkeeper expert user 8 9
S-45 35 MS other 16 parent expert user 9 10
S-46 72 PD F 18 physical therapist some familiarity 9 10
S-47 50 MS M 16 researcher expert user 8 10
S-48 61 MS F 19 teacher expert user 10 10
S-49 55 MS F 12 dispatcher some familiarity 9 10
S-50 43 MS M 16 graphic designer some familiarity 8 10
S-51 71 PD F 18 nurse practitioner some familiarity 10 10

Note. S= Survey Respondent, PD = Parkinson’s disease, ALS = Amyotrophic Lateral Sclerosis, MS = Multiple Sclerosis, SMA = Spinal Muscular Atrophy, PLS = Primary Lateral Sclerosis, MSA = Multiple Systems Atrophy, ALS-SS = ALS Severity Scale

a

This assessment has a range of 0-10 points.

b

This online assessment has a range of 0-10 points.