Table 3.
Hypothetical vignettes and prompts presented to interview cohort
Hypothetical vignettes (summary) | Interview prompts (examples) |
---|---|
An individual with Parkinson’s disease considers providing BCI researchers with a collection of personal letters she has written to her daughter over many years. | What do you think about personalizing a BCI device and its effect on the relationship of a device user and those important to them? |
An individual with stroke-related communication impairment considers providing BCI researchers with YouTube videos he made earlier in his life, including ones that involved crass and violent language. | How can the words a person used during an early phase of life connect with how a person views themselves now? |
An individual with ALS considers providing BCI researchers with recordings of her comedy shows, an area of her life of which her family is unaware. | What do you think about one’s ability to use technology to paint a picture about who one is or wants to be? |
An individual with advanced multiple sclerosis considers providing BCI researchers with personal emails, including ones that involve her romantic history. | What do you think about the ability of technology to reveal things that people don’t even know about themselves? |
Individual with ALS considers providing BCI researchers with work-related emails in which her way of speaking differs from how she speaks with friends and family. | How might a person try to change how others view them by choosing different types of words? |
Spouse of individual with locked-in syndrome from late-stage ALS considers providing BCI researchers with her partner’s personal diary. | What role should those people important to the person using a BCI play in collecting language sources to improve performance? |