Table 1.

Minimum data set to be included in reports of advanced ACC at the time of treatment initiation

Age and comorbidity, performance status

Interval of time since first diagnosis of ACC

Interval of time since diagnosis of stage III–IV ACC

Items of the Weiss score

Proliferative index per 50 HPF: mitotic count (count 10 HPF in the area of greatest numbers or mitotic figures) and Ki67 (in the most active regions, count multiple regions)

Secretory status

pTNM UICC and ENSAT staging

FDG-PET status at diagnosis

Number of abnormal lymph nodes at imaging or positive at pathology

Presence of venous invasion or adjacent organ invasion

Number and type of tumor organs

Resection of the primary; R status if surgery was performed

Mitotane plasma levels at the time of polychemotherapy initiation

Signed informed consent for bioresource use when available

Planned modality of follow-up