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. Author manuscript; available in PMC: 2023 Oct 1.
Published in final edited form as: J Hosp Palliat Nurs. 2022 Jun 6;24(5):E226–E232. doi: 10.1097/NJH.0000000000000887

Table 1:

Summary of Policies for Family Caregivers and Financial Burden

Policy Type of Support
Family and Medical Leave Act of 1993 Employment, direct health care costs with insurance, with expansion to robust paid family leave could also address the social determinants of health
Recognize, Assist, Include, Support, and Engage (RAISE) Family Caregivers Act Direct and incidental costs with resource access, potential for employment protection by providing more resources to caregivers who are employed, potential to address social determinants of health if fully deployed in under-resourced family caregiving communities
The American Rescue Plan Act Potential to address employment, direct and incidental costs, and social determinants of health. Limited by timeframe with some benefits that expired in 2021 and some that are expiring in 2022
National Family Caregiver Support Program Potential to address employment, direct and incidental costs, and social determinants of health. Limited by the populations that qualify for this program.
Lifespan Respite Care Act of 2006 Potential to address employment, direct and incidental costs, and social determinants of health. Limited by the populations that qualify for this program.
Caregiver Advise, Record, Enable (CARE) Act Potential to address employment, direct and incidental costs, and social determinants of health if recognition of the caregiver also results in more referrals and supports for both the care recipient and caregiver.
Washington’s Long-Term Care Trust Act Specifically supports direct health care costs for care recipient, but impact could go beyond with decreased caregiver burden (indirect and incidental caregiver costs), increased caregiver time (less employment conflict), and supporting under-resourced caregivers (social determinants of health)
Hawaii’s Kupuna Caregivers Assistance Act Specifically supports direct health care costs for care recipient, but impact could go beyond with decreased caregiver burden (indirect and incidental caregiver costs), increased caregiver time (less employment conflict), and supporting under-resourced caregivers (social determinants of health)
Family Caregivers as Protected Category for Workplace Discrimination (Delaware and the District of Columbia) Directly affects employment and financial burden, but has potential to impact other areas such as caregiver health and social determinants of health for under-resourced family caregivers.