Table 4.
Perceived very negative experiences (n=1305).
| Themes | Values, n (%)a | |
| Information not available | ||
|
|
Missing information | 438 (33.56) |
|
|
Delay in access | 227 (17.39) |
|
|
Information from private health care is missing | 31 (2.38) |
|
|
Information does not transfer to other health care system or service | 21 (1.61) |
|
|
Delay in access because validation by HCPb is still missing | 12 (0.92) |
|
|
HCP responsible for patient does not get information | 6 (0.46) |
| Finding information is difficult | ||
|
|
Information difficult to find | 255 (19.54) |
|
|
Disorganized system or view | 50 (3.83) |
|
|
Disorganized view of prescriptions | 49 (3.75) |
|
|
Multiple information levels | 23 (1.76) |
|
|
Examination and test results difficult to view or compare | 18 (1.38) |
|
|
Viewing and comparing HCP notes are difficult | 11 (0.84) |
| Specific functionality challenges | ||
|
|
Renewing prescriptions | 80 (6.13) |
|
|
Acting on behalf of adult or child | 59 (4.52) |
|
|
EUc digital COVID-19 vaccination certificate | 38 (2.91) |
|
|
Consent to, or denial of, sharing of own data | 32 (2.45) |
|
|
Printing or saving | 22 (1.69) |
|
|
Living will or organ donation testament | 6 (0.46) |
| Portal is difficult to use | ||
|
|
Challenges with logging in or out | 36 (2.76) |
|
|
Issues with menu, topics, navigation, or structure | 34 (2.61) |
|
|
Technical problem | 27 (2.07) |
|
|
Worries about privacy | 24 (1.84) |
|
|
Reading on mobile or tablet devices is difficult | 21 (1.61) |
|
|
Slow | 9 (0.69) |
|
|
System itself | 9 (0.69) |
|
|
Need for another person’s help | 6 (0.46) |
|
|
Missing or changing instructions | 5 (0.38) |
| Information is incorrect | ||
|
|
Incorrect notes | 80 (6.13) |
|
|
Incorrect information or errors | 42 (3.22) |
|
|
Errors in notes are difficult or impossible to correct | 33 (2.53) |
| Missing functionality | ||
|
|
Information about future appointments | 63 (4.83) |
|
|
Real-time connection with health care | 25 (1.92) |
|
|
Correcting or commenting on health information | 15 (1.15) |
|
|
Notification of new information | 12 (0.92) |
|
|
Inaccuracy of the information who viewed the shared data | 10 (0.77) |
|
|
Booking an appointment | 5 (0.38) |
| Information difficult to understand | ||
|
|
Medical terminology difficult to understand | 24 (1.84) |
|
|
Notes difficult to understand | 7 (0.54) |
|
|
Wrong language (eg, Finnish instead of Swedish) | 7 (0.54) |
| Information is inappropriate | ||
|
|
Inappropriate notes | 16 (1.23) |
|
|
HCP added information without telling the patient | 10 (0.77) |
|
|
Unwanted (older) information is visible | 6 (0.46) |
| Multiple digital channels: multiple similar systems | 20 (1.53) | |
aA respondent may have mentioned more than one experience.
bHCP: health care professional.
cEU: European Union.