Table 1.

Iteration 1: Developing a 2-Column Joint Display

Quantitative Questions	Qualitative Questions
Role functioning Keep up with household tasks. Scale 0-10; not at all–usual Confidence in ability to care for child. Scale 0-10; no confidence–very confident Independence. Scale 0-10; very clingy–as usual	What is it like caring for your child when they are ill? What are the extra resources and help required to keep your family functioning during fever neutropenia episodes?
Emotional functioning Level of concern about child’s condition. Scale 0-10; very anxious–very calm Confidence in ability to care for child. Scale 0-10; no confidence–very confident Satisfaction with overall care. Scale 0-10; very unhappy–very happy Mood. Scale 0-10; very upset–very happy	How has your child’s illness emotionally affected you?
Cognitive functioning Interest or concentration. Scale 0-10; not as usual–as usual Sleep at night. Scale 0-10; much worse–as usual Activity or energy level. Scale 0-10; not at all–most of the time	Will you describe how school and work have been affected by your child’s illness?
Social functioning Spend time with partner. Scale 0-10; not at all–usual Spend time with other children. Scale 0-10; not at all–usual	How has your child’s illness affected members in your family?
Symptoms Appetite. Scale 0-10; very poor–very good	How are symptoms different when you are at home versus in the hospital?
Global Well-being. Scale 0-10; very poor–very good	In your opinion, what value listed above is most important to you? Is there anything else you would like to share about caring for your child during fever neutropenia?