Table 3.

Iteration 3: Expanding the Joint Display by Data Sources

Joint Display of Integrated Mixed Methods Data Collection
Construct	Quantitative Questions From Patient-Caregiver Survey	Qualitative Questions From Patient-Caregiver Survey	Quantitative Clinical Variables From Medical Record Abstraction	Qualitative Clinical Variables From Medical Record Abstraction
Role Functioning	Keep up with household tasks. Scale 0-10; not at all–usual Confidence in ability to care for child. Scale 0-10; no confidence–very confident Independence. Scale 0-10; very clingy–as usual	What is it like caring for your child when they are ill? What are the extra resources and help required to keep your family functioning during fever neutropenia episodes?	Hospital LOS readmission demographics: Age Gender Ethnicity Episode characteristics Clinical dx or MDI diagnosed? (URI, UTI, fungal, C diff, BSI, typhlitis, etc)	Risk stratification: High or low risk at presentation High or low risk after 1 night’s observation Type of outpatient FU (VR vs in-person)
Emotional Functioning	Level of concern about child’s condition. Scale 0-10; very anxious–very calm Confidence in ability to care for child. Scale 0-10; no confidence–very confident Satisfaction with overall care. Scale 0-10; very unhappy–very happy Mood. Scale 0-10; very upset–very happy	How has your child’s illness emotionally affected you?	Oncologic history: Primary diagnosis Date of dx Phase of therapy Disease status Demographics: Age Gender Ethnicity Episode characteristics Clinical dx or MDI diagnosed? (URI, UTI, fungal, C diff, BSI, typhlitis, etc)	Discharger/follow-up description: Type of follow-up (phone, video, clinic) Who did follow up visits (RN, NP, fellow, attending)? Frequency RN, parent, provider concerns documented
Cognitive Functioning	Interest or concentration. Scale 0-10; not as usual–as usual Sleep at night. Scale 0-10; much worse–as usual Activity or energy level. Scale 0-10; not at all–most of the time	Will you describe how school and work have been affected by your child’s illness?	PICU admission: LOS ≤3 days Acute respiratory failure present Need for advanced airway NIPPV or HFNC? Need for pressor support Is activity level affected by persistent N/V, typhlitis, need for IV narcotics, longer-length antibiotics, LOS?	PICU admission: Related to FN Noninfectious concern Disease status Evidence of shock Risk stratification: High or low risk at presentation High or low risk after 1 night’s observation
Social Functioning	Spend time with partner. Scale 0-10; not at all–usual Spend time with other children. Scale 0-10; not at all–usual	How has your child’s illness affected members in your family?	Hospital LOS Readmission	Type of outpatient FU (VR vs in-person)
Symptoms	Appetite. Scale 0-10; very poor–very good	How are symptoms different when you are at home versus in the hospital?	Persistent N/V or C diff present?	Evidence of mucositis or typhlitis? Severe pain w/ IV narcotic requirement
Global	Well-being. Scale 0-10; very poor–very good	In your opinion, what value listed above is most important to you? Is there anything else you would like to share about caring for your child during fever neutropenia?	Hospital LOS Readmission PICU admission, LOS Oncologic history: Primary diagnosis Disease status	Risk stratification: High or low risk at presentation High or low risk after 1 night’s observation

BSI = bloodstream infection; C diff = Clostridioides difficile; dx = diagnosis; FN = febrile neutropenia; FU = follow-up; HFNC = high-flow nasal cannula; IV = intravenous; LOS = length of stay; MDI = microbiologically documented infection; NIPPV = noninvasive positive pressure ventilation; NP = nurse practitioner; N/V = nausea/vomiting; PICU = pediatric intensive care unit; RN = registered nurse; URI = upper respiratory infection; UTI = urinary tract infection; VR = virtual; w/ = with.

Note: Table footnotes have been added to improve clarity and readability. They were notably absent in the original tables.