Table 2.

“Must have,” “nice to have,” and “should not have” components determined by caregivers and clinicians.

	Must have	Nice to have	Should not have
Educating caregivers and patients	Kidney condition treatment and monitoring Tips for lifelong monitoring Real-world experiences Benefits of monitoring Appropriate tone Presented in simple terms Use visuals	Real-world implications of kidney injury Guide to the NICUa and kidney care How to advocate for your child Clinic visit guide Laboratory testing guide Questions to ask clinician Help with blood work and how to collect urine Gamify education Use videos Intentionally build clinic or follow-up retention	Make caregivers feel guilty about their child’s kidney disease risk
Enhances communication	—b	Communication between patient and clinician Questions and answers space, or frequently asked questions NICU doctor livestream video Communication between clinicians Share laboratory results	Avoid increasing work burden of clinicians
Make scheduling appointments easier	—	Scheduling Help stacking and coordinating appointments to one visit Appointment tracking and reminders	—
Track and sense make of laboratory results for caregivers	Explain and interpret laboratory results	Longitudinal tracking of laboratory results Alert for concerning laboratory results	—
Identify treating health care team for caregivers	—	Staff profiles and list	—
Support for caregivers	—	Offer community and support	—
Help caregivers	—	Note taking, keeping resources together Longitudinal life of tool Custom to patient	—
Access information outside of the stressful NICU setting	App Website Printed materials	Translate into different languages Content on tablet at hospital	—

^aNICU: neonatal intensive care unit.

^bN/A: not applicable.