Table 1.

Number of deaths and percentage by age at death in children with a major congenital anomaly reported by participating EUROCAT registries and databases

Participating registries	Included birth years	No of livebirths	% of all live births linked	Only underlying cause of death provided	No of deaths	Percentage of deaths (%)
						Infants <28 days	Infants 28–364 days	Children 1–9 years
Denmark, Funen*	1995–2014	2 425	100.0		150	58	30	11
Finland	1995–2014	42 921	99.9		1 770	61	24	15
Italy, Emilia Romagna	2008–2014	5 589	91.4		204	52	39	9
Italy, Tuscany	2005–2014	4 312	87.2	Yes	148	48	36	16
Malta	1995–2014	2 718	91†		241	69	20	11
Northern Netherlands*	1995–2014	8 605	96.7	Yes	620	66	21	13
Norway	1999–2014	27 201	100.0		1 034	58	27	15
Spain, Basque Country	1995–2014	5 904	94†	Yes	411	52	37	11
Spain, Valencian Region	2007–2014	7 389	95†	Yes	416	58	30	13
UK, Thames Valley*	2005–2013	3 988	96.5		295	56	30	14
UK, EMSY*	2003–2012	11 587	97.3		910	52	32	16
UK, Wessex*	2004–2014	4 729	91.7		330	51	33	15
UK, Wales*	1998–2014	18 188	99.7		845	50	32	18
Total					7 386	57	28	15

*Numbers of deaths rounded to nearest multiple of 5 due to disclosure requirements.

†Estimated proportion as linkage was to mortality records only and completeness could not be directly estimated.

EMSY, East Midlands and South Yorkshire; EUROCAT, European Surveillance of Congenital Anomalies.