TABLE 4.

Votes on Contextual Considerations and Potential Other Benefits or Disadvantages for Eculizumab vs Usual Care

What are the relative effects of eculizumab vs conventional therapy on the following outcomes that inform judgment of the overall long-term value for money of eculizumab?
Potential other benefit or disadvantage	Major negative effect	Minor negative effect	No difference	Minor positive effect	Major positive effect
Patients’ ability to achieve major life goals related to education, work, or family life	0	0	0	8	3
Caregivers’ quality of life and/or ability to achieve major life goals related to education, work, or family life	0	0	1	8	2
Society’s goal of reducing health inequities	3	0	7	1	0