Table A5.

Completion times of parent questionnaires by patient subgroup, age group and gender.

	PROM Parents
Completion Time		Disease Group		Age Group (Years)					Child’s Gender
	Total (n = 94)	Kidney disease (n = 54)	Hematological disease (n = 40)	0–1 (n = 0)	2–4 (n = 12)	5–7 (n = 17)	8–12 (n = 40)	13–18 (n = 25)	Girls (n = 34)	Boys (n = 60)
Median (IQR)	3.1 (2.3–4.0)	3.1 (2.3–3.8)	3.2 (2.3–4.4)	-	3.5 (2.3–4.1)	2.8 (2.2–3.7)	3.0 (2.4–3.8)	3.4 (2.2–4.5)	3.4 (2.7–5.0)	2.9 (2.2–3.8)
Min–max	1.3–17.8	1.3–12.8	1.3–17.8	-	1.7–7.4	1.3–10.6	1.7–11.6	1.3–17.8	1.5–17.8	1.3–12.8
	PREM parents
		Disease group		Age group (years)					Child’s gender
	Total (n = 104)	Kidney disease (n = 62)	Hematological disease (n = 42)	0–1 (n = 7)	2–4 (n = 13)	5–7 (n = 16)	8–12 (n = 42)	13–18 (n = 26)	Girls (n = 42)	Boys (n = 62)
Median (IQR)	3.2 (2.4–4.1)	3.3 (2.4–4.1)	3.0 (2.5–4.2)	3.2 (2.7–4.0)	2.8 (2.5–3.2)	2.8 (2.3–3.9)	3.3 (2.6–4.1)	3.1 (2.3–4.3)	3.3 (2.5–4.4)	3.1 (2.4- 3.9)
Min–max	1.5–14.7	1.5–14.7	1.6–7.8	2.5–4.7	2.4–6.4	1.6–6.8	1.9–14.7	1.5–8.0	1.5–14.7	1.5–10.6