Table 2.
Percentage of patients per EDSS category within the NTD registry cost population (2019).
| Overall
a
n = 7286 |
EDSS
0–3.5 n = 5230 |
EDSS
4–6.5 n = 1750 |
EDSS 7+ n = 306 |
|
|---|---|---|---|---|
| Direct medical | ||||
| MS patients using outpatient nursing care | 126 (1.7) | 17 (0.3) | 59 (3.4) | 50 (16.3) |
| MS patients using care during day | 17 (0.2) | 3 (0.1) | 8 (0.5) | 6 (2.0) |
| MS patients using short-term care | 13 (0.2) | 2 (0.0) | 6 (0.3) | 5 (1.6) |
| MS patients using inpatient care | 26 (0.4) | 5 (0.1) | 13 (0.7) | 8 (2.6) |
| MS patients with spinal MRI in last 12 months | 1335 (18.3) | 1029 (19.7) | 284 (16.2) | 22 (7.2) |
| MS patients with cranial MRI in last 12 months | 3055 (41.9) | 2391 (45.7) | 614 (35.1) | 50 (16.3) |
| MS patients with blood test in last 12 months | 1908 (26.2) | 1426 (27.3) | 446 (25.5) | 36 (11.8) |
| MS patients with speech therapist visit in last 12 months | 68 (0.9) | 24 (0.5) | 27 (1.5) | 17 (5.6) |
| MS patients with occupational therapist visit in last 12 months | 350 (4.8) | 108 (2.1) | 179 (10.2) | 63 (20.6) |
| MS patients with psychotherapist visit in last 12 months | 258 (3.5) | 178 (3.4) | 70 (4.0) | 10 (3.3) |
| MS patients with physiotherapist visit in last 12 months | 2182 (30.0) | 978 (18.7) | 986 (56.3) | 218 (71.2) |
| MS patients with acupuncturist visit in last 12 months | 35 (0.5) | 18 (0.3) | 13 (0.7) | 4 (1.3) |
| MS patients with cortisone therapy in last 12 months | 797 (10.9) | 562 (10.8) | 210 (12.0) | 25 (8.2) |
| MS patients with fampridine therapy in last 12 months | 637 (8.7) | 92 (1.8) | 440 (25.1) | 105 (34.3) |
| Direct non-medical | ||||
| MS patients using crutches | 906 (12.4) | 123 (2.4) | 660 (37.7) | 123 (40.2) |
| MS patients using wheelchair | 635 (9.6) | 18 (0.4) | 381 (24.9) | 236 (86.5) |
| MS patients using walker | 707 (9.7) | 56 (1.1) | 509 (29.1) | 142 (46.4) |
| MS patients using stairlift | 237 (3.3) | 83 (1.6) | 105 (6.0) | 49 (16.0) |
| MS patients using house modifications | 353 (4.8) | 52 (1.0) | 195 (11.1) | 106 (34.6) |
| MS patients using catheter | 105 (1.4) | 12 (0.2) | 53 (3.0) | 40 (13.1) |
| MS patients using incontinence pads | 726 (10.0) | 284 (5.4) | 354 (20.2) | 88 (28.8) |
| MS patients using diapers | 152 (2.1) | 20 (0.4) | 85 (4.9) | 47 (15.4) |
| MS patients using bed pads | 190 (2.6) | 39 (0.8) | 83 (4.7) | 68 (22.2) |
| MS patients using tube lift | 87 (1.2) | 5 (0.1) | 48 (2.7) | 34 (11.1) |
| MS patients using walking aids (crutches or ambulators) | 1150 (15.8) | 128 (2.5) | 774 (44.2) | 248 (81.1) |
| MS patients using domestic aid | 1364 (18.7) | 614 (11.7) | 594 (33.9) | 156 (51.0) |
| MS patients using care by family | 439 (6.0) | 62 (1.2) | 258 (14.7) | 119 (38.9) |
| Indirect | ||||
| % of working age (below 65 years) b | 6838 (93.9) | 5086 (97.3) | 1514 (86.5) | 238 (77.8) |
| MS patients on full disability pension (of below 65 years) | 1261 (18.4) | 447 (8.8) | 665 (43.9) | 149 (62.6) |
| MS patients working full time (of below 65 years) | 3195 (46.7) | 2821 (55.5) | 348 (23.0) | 26 (10.9) |
| MS patients on disability pension (partial or full) of below 65 years | 1383 (20.2) | 508 (10.0) | 723 (47.8) | 152 (63.9) |
| MS patients with sick days last 12 months (of full-time working population) | 333 (10.4) | 288 (10.2) | 43 (12.4) | 2 (7.7) |
EDSS, Expanded Disability Status Scale; MRI, magnetic resonance imaging; MS, multiple sclerosis; NTD, NeuroTransData.
a
% calculated on n of those of working age.
b
% calculated on n of those working full-time.