Table 1.
Items pool during the patient engagement nominal group technique
Item # | Item name | Voting score |
---|---|---|
1 | Ability to participate in social games with family members (board games, ball catch) | 9 |
2 | Ability to participate in recess at school with peers (elementary) | 7 |
3 | Ability to use adapted objects | 8 |
4 | Autonomy (individualized goals) | 10 |
5 | Putting on pants | 9 |
6 | Satisfaction with completion of tasks | 7 |
7 | Eating (holding a bottle) | 10 |
8 | Using spoon/fork | 9 |
9 | Range of motion of shoulder, elbow, wrist, and fingers | 7 |
10 | Picking up an object | 11 |
11 | Constantly re-evaluating | 7 |
12 | Everyday living | 9 |
13 | Milestones-appropriate goals | 9 |
14 | Holistic, global approach | 6 |
15 | Writing | 8 |
16 | Bilateral hand use | 8 |
17 | Active vs. passive ROM | 8 |
18 | Reaching mouth | 10 |
19 | Playing at midline | 8 |
20 | Throwing | 7 |
21 | Dressing (donning and doffing coat) | 9 |
22 | Brushing teeth | 9 |
23 | Getting out of bed | 10 |
24 | Natural vs. clinical environment | 7 |
25 | Completing activities per age (developmental milestones) | 8 |
26 | Routine breakdown | 8 |
27 | Preparing food | 7 |
28 | Driving a car | 7 |
29 | Opening a door using a key | 7 |
30 | Managing hair | 8 |
31 | Light switches | 8 |
32 | Scoring and recommendations (caregivers wanted to understand what the scores of their child’s performance on outcome measures represented and how it impacted treatment recommendations) | 7 |