Table 1.

Number and value of payments from the pharmaceutical industry to UK patient organisations broken down by year and rarity of diseases

Payment statistics
Number of payments	1422
Median payment (IQR; overall)	£7943 (£1200–£15 000)
Median payment (IQR; rare)	£8775 (£2500–£15 965)
Median payment (IQR; non-rare)	£9060 (£1520–£16 850)
Value of payments (£; overall)	£22 577 314
Value of payments (£; rare)	£4 629 779
Value of payments (£; non-rare)	£15 875 662
Number of pharmaceutical companies	74
Number of patient organisations	341

Notes: All payments are expressed in 2020 Great British pounds. The supplemental materials detail the conversion rates used, which were retrieved from the Office of National Statistics website. Further details on how patient organisation data were cleaned and coded, please see the online supplemental materials. Please note that the number of pharmaceutical companies and patient organisations making and receiving payments across the study period refers to companies and organisations that made or received at least one payment, respectively.