Table 1.
The Preliminary List of Fields of Data Collection in the AEPC Interventional Cardiology Part of the ECHSA-CD.
| Name | Type | Length | Mandatory | Comments | |
| Patient | |||||
| FirstName | Text | 128 | No | This field is mandatory in client software, exports to central database, and does not contain any personal data. | |
| LastName | Text | 128 | No | This field is mandatory in client software, exports to central database, and does not contain any personal data. | |
| LocalID | Text | 128 | Yes | ||
| Gender | Dictionary | Yes | (see table dictionaries) | ||
| DateOfBirth | Date | Yes | |||
| DateOfDeath | Date | No | |||
| GestationalAge | Integer | No | weeks | ||
| AntenatalDiagnosis | Yes/No | No | |||
| PrimaryOperationNo | Yes | (ID of patient's primary operation) | |||
| DateOfLastFollowUp | Date | No | |||
| LastFollowUpNYHAClassification | Dictionary | No | |||
| PostRheumaticHeartDisease | Yes/No | No | |||
| DataVersion | Dictionary | Yes | (version of nomenclature used) | ||
| Diagnoses | |||||
| Factor_code | Dictionary | Yes | (see table factors) | ||
| Priority | Integer | Yes | |||
| Admission | |||||
| DateOfAdmission | Date | Yes | |||
| DateOfDischarge | Date | Yes | |||
| DischargeLocation | Dictionary | No | |||
| ReadmissionWithin30DaysReason | Dictionary | No | |||
| CardIntervention | |||||
| STSTerm - v3.4 - Diagnosis | Dictionary | ||||
| Procedure STS term | Dictionary | Yes | |||
| Procedure performed | Dictionary | Yes | |||
| Procedure detail (drop down) | Dictionary | Yes | |||
| Manufacturer dropdown | Dictionary | Yes | |||
| Types of devices | Dictionary | Yes | |||
| Size | Integer (1-99) | millimeter | |||
| Stents manufacturer | Dictionary | ||||
| Type stent | Dictionary | ||||
| Coils | Dictionary | ||||
| Complication yes/no | |||||
| Complication detail dropdown I | Dictionary | ||||
| Complication detail dropdown II | Dictionary | ||||
| Fluoroscopy time | Integer (1-999) | minutes | |||
| Radiation dose | cGy*cm2 | ||||
| Duration of procedure (skin in to skin out) |
Integer (1-999) | minutes | |||
| Success | Yes/No |
Abbreviations: AEPC, Association for European Paediatric and Congenital Cardiology; ECHSA-CD, European Congenital Heart Surgeons Association Congenital Database; STS, Society of Thoracic Surgeons.