Table 1.
Characteristics of participants
| Characteristics | 1st Delphi, n | 2nd Delphi, n | 1st consensus meeting, n | 2nd consensus meeting, n |
|---|---|---|---|---|
| Total | 209 | 116 | 13 | 17 |
| Stakeholders | ||||
| Service users: Women with multiple long-term conditions | 62 | 38 | 6 | 9 |
| Service users: Partner | 1 | 1 | - | - |
| Service providers: Health or social care professionals | 102 | 52 | 7 | 8 |
| Researchers | 44 | 25 | (5 health professionals have dual roles as researchers) | (8 health professionals have dual roles as researchers) |
| Consensus meeting recruitment | ||||
| From focus group and Delphi surveys participants | - | - | 8 | 11 |
| From research team | - | - | 3 | 1 |
| From Patient and Public Involvement Advisory Group | - | - | 2 | 5 |
| Geography | ||||
| Africa | 51 | 20 | 1 | 1 |
| Asia | 23 | 14 | - | - |
| Australia and New Zealand | 7 | 5 | - | - |
| Europe | 112 | 70 | 12 | 16 |
| Middle East | 3 | 1 | - | - |
| North America | 11 | 5 | - | - |
| South America | 1 | 1 | - | - |
| Prefer not to say | 1 | - | - | - |
| Urban/rural | ||||
| Urban | 169 | 97 | 11 | 15 |
| Rural | 35 | 15 | 2 | 1 |
| Prefer not to say | 5 | 4 | - | 1 |
| Ethnicity | ||||
| Asian | 40 | 26 | - | 1 |
| Black, Caribbean or African | 48 | 21 | 1 | 2 |
| Mixed or multiple ethnic groups | 3 | 1 | - | - |
| White | 110 | 66 | 11 | 13 |
| Other | 4 | - | - | - |
| Prefer not to say | 4 | 2 | 1 | 1 |
| Age in years | ||||
| Median (interquartile range) | 36 (31 to 44) | 37 (32 to 47) | 42 (32 to 44) | 41 (34 to 46) |
| Range | 22 to 70 | 23 to 70 | 28 to 70 | 28 to 61 |
| Prefer not to say/missing | 4 | 3 | 1 | 1 |
| Woman stakeholders | ||||
| Pregnant in the last 5 years | 54 | 33 | 3 | 3 |
| Planning a pregnancy | 8 | 5 | 1 | 1 |
| Patient and Public Involvement Advisory Group | - | - | 2 | 5 |
| Number of health conditions (median, IQR) | 3 (2 to 4) | 3 (2 to 4) | 4 (2 to 6) | 3 (2 to 4) |
| Number of health conditions (range) | 2 to 11 | 2 to 11 | 2 to 11 | 2 to 11 |
| Health conditions | ||||
| Mental health conditions | 29 | 17 | 4 | 4 |
| Rheumatology/musculoskeletal | 21 | 13 | 4 | 3 |
| Gastroenterology | 16 | 6 | - | 1 |
| Endocrine | 15 | 10 | - | - |
| Respiratory | 13 | 8 | 1 | 1 |
| Neurology | 12 | 8 | 2 | 3 |
| Women’s health | 12 | 7 | - | 1 |
| Cardiovascular | 12 | 6 | 1 | - |
| Dermatology/allergies | 11 | 5 | - | 1 |
| Other | 5 | 3 | 1 | 2 |
| Neurodevelopmental | 5 | 2 | 1 | 2 |
| Haematology | 4 | 4 | 1 | 1 |
| Genetic | 4 | 3 | - | - |
| Under-served characteristics (Includes addiction, asylum seeker, disabled, homeless/supported accommodation, LGBTQ+, migrant, victims of domestic abuse, other) | 18 | 14 | 5 | 8 |
| Education | ||||
| Primary | 1 | 1 | - | - |
| Secondary | 10 | 7 | - | 1 |
| Tertiary | 46 | 27 | 6 | 7 |
| Vocational | 4 | 2 | - | 1 |
| Other | - | - | - | - |
| Prefer not to say | 1 | 1 | - | - |
| Health or social care professional stakeholders | ||||
| Midwife/nurse/health visitor | 39 | 19 | 4 | 3 |
| Obstetrician/maternal and fetal medicine specialist | 19 | 9 | 1 | 1 |
| Obstetric physician/physician/anaesthetist | 15 | 10 | - | 1 |
| Family medicine/general practitioner | 9 | 5 | 1 | 1 |
| Paediatrician/neonatologist | 7 | 4 | 1 | 1 |
| Psychiatrist/perinatal mental health specialist/psychotherapist | 5 | 2 | - | 1 |
| Other | 5 | 1 | - | - |
| Not stated | 3 | 2 | - | - |
| Researcher stakeholders’ area of research | ||||
| Maternal and infant health/midwifery/obstetrics/women’s/reproductive health | 24 | 14 | 5 | 4 |
| Epidemiology/pharmacoepidemiology | 6 | - | - | - |
| Primary care/nursing | 3 | 3 | - | 1 |
| Medical specialties | 2 | 2 | - | 2 |
| Psychiatry/psychology | 2 | 2 | - | 1 |
| Not stated | 7 | 4 | - | - |
IQR Interquartile range, LGBTQ+ Lesbian, gay, bisexual, transgender, queer and others