Table 2.

Pre-pandemic frequency of newborn screening or̄ suspected SMA referrals

Pre-pandemic referral frequency (Sept. 2019–Feb. 2020)	SMA newborn screening referrala		Referral for suspected SMA
	Care-and-trial sites (n = 17) % (n)	Care sites (n = 13) % (n)	Care-and-trial sites (n = 26) % (n)	Care sites (n = 22) % (n)
Once weekly	0% (0)	0% (0)	3.8% (1)	0% (0)
Once monthly	29.4% (5)	15.4% (2)	46.2% (2)	31.8% (7)
Once quarterly	47.1% (8)	15.4% (2)	34.6% (9)	40.9% (9)
About twice a year	5.9% (1)	23.1% (3)	3.8% (1)	18.2% (4)
About once a year	5.9% (1)	15.4% (2)	11.5% (3)	9.1% (2)
Not applicable; SMA was not included within my state’s newborn screening panel during the specified time	11.8% (2)	30.8% (4)	n/a	n/a

^aSample size reflects number of respondents practicing in states for which SMA was included within newborn screening panel at time of survey completion