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. Author manuscript; available in PMC: 2023 Aug 23.
Published in final edited form as: Genet Med. 2018 Oct 29;21(4):965–971. doi: 10.1038/s41436-018-0320-1

Table 3.

Reasons for adolescents’ independent choices and changes during joint choices

Themes Definition
Reasons for adolescents independent choices (N = 64)
Actionability of information (n = 57) Adolescents describe how learning results for certain types of conditions could or could not be used to initiate an action; this theme is also informed by adolescents who described that their exclusions of certain types of conditions were made to avoid influence on reproductive decisions or life choices
Knowledge seeking (n = 61) Adolescents describe how learning results for conditions is important for the sake of knowledge, to satisfy curiosity, or to benefit family members
Psychosocial impact (n = 46) Adolescents describe psychosocial benefits and risks to learning results for all or certain types of conditions
Reasons for adolescents’ changes during joint choices (N = 31)
Parental influence (n = 16) Adolescent indicates a change in choice was because of the parent’s reasons for wanting to learn adolescent’s results for certain types of conditions
Improved understanding (n = 8) Adolescent’s statement or question reveals need for clarification and is followed by adolescent indicating change in their choice was influenced by additional information provided during the joint session