Table 5.
Quotes about patients’ perspectives of interprofessional teams – Framing of goal setting.
| Q19 | In life, whether you are healthy or disabled, goal setting is always the most important thing. Without goals, you get lost. And if you have a goal, then you have a line. From my point of view, this is an incredibly important step. And without setting goals, you don't get anywhere in life. (ST02) |
| Q20 | No, I think it is important to get yourself involved because sometimes you don't exactly have the same roadmap in mind as doctors or therapists. (ST10) |
| Q21 | Yes, if I didn't get involved, I would just get it over with. What I put in feels different, if I am involved in the goal-setting process myself, then I certainly handle the execution differently as well. (ST03) |
| Q22 | That I get to the big goal, the sequence of the small goals, that's not up to me, they have to give that to me here. What do I start with, do I start with putting on clothes or do I start with the transfer or do I start with, what do I know. It's about them showing me what the goals are. (ST01) |
| Q23 | Ah, I feel well involved there. There are somehow ten people in the room and they all say something and I have to say at the end whether it is good or not. (ST03) |
| Q24 | No, I think I'm doing very well. I choose my own goals now. I say what I want to learn. Although sometimes they say “yes, you should do that” and I say no. I know better what I want, what goals are more important for me and what I want to do. I'm sure about that. I see clearly what I need to do, what I need to learn. I see it all clearly. (ST08) |
| Q25 | So, and I think for Nottwil and this center, they do a really good job on rehabilitation as far as the goal is an individual being able to function as independently as they’re capable of, once they leave the facility. I mean I think everybody has the same end goal. And I think they do really good at that. If you want extra, you want to do something even slightly outside of what is considered rehabilitation, that is not something that you’ll get here. I mean there’s not, I don’t know what that extra is, but maybe something that’s a little bit more experimental or, I don’t know, I think they have a very conservative approach in treating all patients equally, or all types of different groups of patients equally based on what type of injury they have. (ST04) |
| Q26 | Ehm, whereby it is important that one checks this, because it could perhaps, also if one sees, how the progress is, one would have to reduce the goals perhaps or also say, maybe there is more possible. (ST07) |
| Q27 | I think that's always the risk when the goals are formulated too openly. Or they are too big. You know that you won't achieve it in two weeks anyway, so you just write the same thing again in two weeks. And depending on that, not necessarily done much. (ST10) |
| Q28 | If these are good therapists, then the goals are actually small steps, which are associated with effort, but are achievable. And then there are also therapists who set the goal or requirements too high, where you then fall on your face. That has happened to me twice now. (ST09) |
| Q29 | Yes, I have learned to set very small goals. Not such a big goal that I'll never reach. But rather very small steps. To break the goal down into small pieces, so to speak, and to build it up in such a way that I can see progress. That's what I was missing at the beginning. (ST06) |
| Q30 | There are areas of improvement. Ehm. I think it needs to be something more, if the therapist or the doctors just checking the box, okay I just did my goal, check, got that completed, you know they need to be an active part of the process. And you know, take it seriously as well. (ST04) |
| Q31 | That's what I meant, you have to listen to the patient. He feels that. […] And if you miss that, the trust gradually disappears. Afterwards you become stubborn, then you say I'll only do what's good for me, done, that's it. (ST06) |
| Q32 | And what might also be helpful is to think about what goals could be set in two or three months, so that you have a bit larger, higher-level goals from which you can derive smaller goals. (ST10) |
| Q33 | I would find it important. If I could also see the big end goal or the range from the possible goal better, then I would find it important. Not such a … Right now, the way things are going, […] it's not that important. (ST05) |
| Q34 | It is always just the next … But this is generally my criticism here, if you talk with any therapist, nobody wants to commit to anything concerning a prognosis, only to formulate the next goal behind it. Nobody wants to do that in front of the patient or in front of other white coats [physicians]. […] This is extremely frustrating. (ST05) |
| Q35 | And, in rehabilitation, it's really important, there, real, that someone sits and says, I'm sorry, this is a little bit too much for your situation. But nobody says that. Nobody dares to do that. You don't want to depress people into giving up prematurely. I can see the motivation behind this, why you go easy on them, but that's wrong in my eyes. (ST06) |