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. Author manuscript; available in PMC: 2023 Aug 24.
Published in final edited form as: J Alzheimers Dis. 2023;94(3):861–878. doi: 10.3233/JAD-230207

Table 4.

Recommendations for research in Lewy body dementia relating to race, ethnicity, and ancestral considerations

Category Considerations
Prevalence Determine prevalence by geographic reasons and different people groups
Diagnosis Identify barriers to symptom recognition or reporting
Identify and address barriers to accessing healthcare for dementia
Determine whether diagnostic criteria perform equally well across groups
Develop and implement culturally sensitive neuropsychological test batteries
Interpret cognitive testing with consideration of language, social determinants of health
Risk factors Assess risk factors (e.g. environmental exposures) that may vary by geographic location (e.g. rural/urban) or background (e.g. vascular risk factors)
Observational studies Include diverse cohorts
Collect data on social determinants of health
Assess biomarker validity across groups
Increase diversity in brain bank studies
Clinical trials Recruit diverse populations
Identify ways to increase access to clinical trials for underrepresented groups (e.g. with regard to travel arrangements, stipends)
Use measures with validated versions across different languages
Employ culturally sensitive neuropsychological test batteries as outcome measures