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. 2023 Aug 29;18:245. doi: 10.1186/s13023-023-02856-6

Table 2.

Results of the consensus on model and transition plan indicators

N % N Mean 95% CI Proportion of physicians with agreement ≥ 7 points (%)
There is a transition model or plan in your hospital
 No 56 65.1
 Yes 30 34.9
Preferred transition model in the care of patients with metabolic bone diseases
 Direct and complete transfer to the adult specialist when patient turns 18 3 3.5
 Gradual transfer to the adult specialist, with multidisciplinary paediatric-adult consultation during the transition 76 88.4
 The patient is seen both in a paediatric clinic and an adult clinic, in different specialties 2 2.3
 No transition, the patient remains with the paediatric specialist in the adult phase as well 1 1.2
 Other type of transition model 2 2.3
 None of the options 2 2.3
Is the transition model you selected as your preferred model feasible in your setting? 86 7.1 6.6–7.6 68.6*
There should be a transitional care unit/programme manager or case manager 86 8.8 8.5–9.1 95.3
It is feasible in your setting to appoint a transitional care unit/programme manager or case manager 86 7.7 7.2–8.1 74.4
Multidisciplinary working groups should be created for the management of adolescents with metabolic diseases 86 9.1 8.8–9.4 95.3
It is feasible in your setting to create multidisciplinary working groups for the management of adolescents with metabolic diseases 86 7.7 7.3–8.1 81.4

*The indicator did not reach consensus