Table 2.
Results of the consensus on model and transition plan indicators
| N | % | N | Mean | 95% CI | Proportion of physicians with agreement ≥ 7 points (%) | |
|---|---|---|---|---|---|---|
| There is a transition model or plan in your hospital | ||||||
| No | 56 | 65.1 | ||||
| Yes | 30 | 34.9 | ||||
| Preferred transition model in the care of patients with metabolic bone diseases | ||||||
| Direct and complete transfer to the adult specialist when patient turns 18 | 3 | 3.5 | ||||
| Gradual transfer to the adult specialist, with multidisciplinary paediatric-adult consultation during the transition | 76 | 88.4 | ||||
| The patient is seen both in a paediatric clinic and an adult clinic, in different specialties | 2 | 2.3 | ||||
| No transition, the patient remains with the paediatric specialist in the adult phase as well | 1 | 1.2 | ||||
| Other type of transition model | 2 | 2.3 | ||||
| None of the options | 2 | 2.3 | ||||
| Is the transition model you selected as your preferred model feasible in your setting? | 86 | 7.1 | 6.6–7.6 | 68.6* | ||
| There should be a transitional care unit/programme manager or case manager | 86 | 8.8 | 8.5–9.1 | 95.3 | ||
| It is feasible in your setting to appoint a transitional care unit/programme manager or case manager | 86 | 7.7 | 7.2–8.1 | 74.4 | ||
| Multidisciplinary working groups should be created for the management of adolescents with metabolic diseases | 86 | 9.1 | 8.8–9.4 | 95.3 | ||
| It is feasible in your setting to create multidisciplinary working groups for the management of adolescents with metabolic diseases | 86 | 7.7 | 7.3–8.1 | 81.4 | ||
*The indicator did not reach consensus