Skip to main content
. Author manuscript; available in PMC: 2023 Aug 30.
Published in final edited form as: Pediatr Transplant. 2021 Nov 24;26(2):e14196. doi: 10.1111/petr.14196

Table 2.

Associations of Demographics and Transplant and Post-transplant characteristics by Location of Death (N=1,113)

Characteristics While awaiting heart transplant Post-heart transplant
All (N=804) In-hospital at time of death P-value¥ All (N=309) In-hospital at time of death P-value¥
Yes (N=718) No (N=86) Yes (N=69) No (N=240)
Patient demographics
Male sex 453 (56.3) 407 (56.7) 46 (53.5) 0.57 177 (57.3) 33 (47.8) 144 (60.0) 0.07
Age at death, years 0.8 (0.2–3.1) 0.7 (0.2–2.9) 1.2 (0.5–5.5) 0.01 11.1 (3.1–17.1) 6.9 (1.3–13.8) 12.3 (3.8–17.8) 0.001
Race (not mutually exclusive) 0.23 0.98
 Caucasian/White 527 (65.5) 478 (66.6) 49 (57.0) 191 (61.8) 43 (62.3) 148 (61.7)
 African American/Black 169 (21.0) 154 (21.4) 15 (17.4) 77 (24.9) 18 (26.1) 59 (24.6)
 American Indian or Alaskan Native 9 (1.1) 7 (1.0) 2 (2.3) 3 (1.0) 1 (1.4) 2 (0.8)
 Asian 24 (3.0) 19 (2.6) 5 (5.8) 10 (3.2) 2 (2.9) 8 (3.3)
 Hawaiian or other Pacific islander 6 (0.7) 5 (0.7) 1 (1.2) 1 (0.3) 0 (0.0) 1 (0.4)
 Other 56 (7.0) 44 (6.1) 12 (14.0) 21 (6.8) 5 (7.2) 16 (6.7)
 Unknown/Undisclosed 29 (3.6) 22 (3.1) 7 (8.1) 12 (3.9) 2 (2.9) 10 (4.2)
Ethnicity 0.53 0.55
 Hispanic 159 (19.8) 139 (19.4) 20 (23.3) 68 (22.0) 15 (21.7) 53 (22.1)
 Non-Hispanic 537 (66.8) 479 (66.7) 58 (67.4) 213 (68.9) 40 (58.0) 173 (72.1)
 Unknown/Not reported 108 (13.4) 100 (13.9) 8 (9.3) 28 (9.1) 14 (20.3) 14 (5.8)
Primary Insurance 0.89α 0.81α
 Charitable Donation 0 (0.0) 0 (0.0) 0 (0.0) 0 (0.0) 0 (0.0) 0 (0.0)
 Free 19 (2.4) 17 (2.4) 2 (2.3) 9 (2.9) 2 (2.9) 7 (2.9)
 Government 426 (53.0) 374 (52.1) 52 (60.5) 163 (52.8) 33 (47.8) 130 (54.2)
 Private 253 (31.5) 223 (31.1) 30 (34.9) 105 (34.0) 20 (29.0) 85 (35.4)
 Self Pay 5 (0.6) 5 (0.7) 0 (0.0) 1 (0.3) 1 (1.4) 0 (0.0)
 Other 11 (1.4) 9 (1.3) 2 (2.3) 11 (3.6) 1 (1.4) 10 (4.2)
 Unknown/Not reported 90 (11.2) 90 (12.5) 0 (0.0) 20 (6.5) 12 (17.4) 8 (3.3)
Primary Etiology 0.04 0.23
 Cardiac Tumor 4 (0.5) 3 (0.4) 1 (1.2) 0 (0.0) 0 (0.0) 0 (0.0)
 Cardiomyopathy 221 (27.5) 189 (26.3) 32 (37.2) 117 (37.9) 30 (43.5) 87 (36.3)
 Congenital Heart Disease 553 (68.7) 502 (69.9) 51 (59.3) 185 (59.9) 37 (53.6) 148 (61.7)
 Myocarditis 26 (3.2) 24 (3.3) 2 (2.3) 7 (2.3) 2 (2.9) 5 (2.1)
Transplant/Post-transplant characteristics
Age at Transplant, years 4.1 (0.7–11.5) 1.7 (0.5–7.4) 5.2 (0.7–12.4) 0.02
Year of Transplant <.0001
 1993–2000 36 (11.7) 20 (29.0) 16 (6.7)
 2001–2010 104 (33.7) 34 (49.3) 70 (29.2)
 2011–2019 169 (54.7) 15 (21.7) 154 (64.2)
Time since transplant, years 2.0 (0.3–6.9) 1.5 (0.1–6.0) 2.6 (0.4–7.0) 0.02
Patient seen for follow-up (anytime during post-transplant) 200 (64.7) 36 (52.2) 164 (68.3) 0.01
*

Data are presented as N (%) for categorical variables and Median (interquartile range) for continuous variables.

¥

P-value from Chi-square test for categorical variables and Wilcoxon rank sum test for continuous variables.

Comparison was made as Caucasian/White vs. all others (except Unknown/Undisclosed) and p-value came from Chi-square test.

α

Comparison was made as Government vs. Private and p-value came from Chi-square test.

Comparison was made as Congenital Heart Disease vs. all others and p-value came from Chi-square test.