Educational needs were qualitatively studied in a bottom-up approach in patients with axial spondyloarthritis (axSpA).

For effective patient education (PE) it is essential that patients’ illness perceptions are taken into account.

Patients with axSpA address prognosis, treatment, and coaching to self-management as the most important PE topics.

In patients with axSpA, a trusting patient–healthcare provider (HCP) relationship and multidisciplinary and interdisciplinary attunement between HCPs are prerequisites for effective PE.