. 2023 Apr 27;7(5):709–722. doi: 10.1007/s41669-023-00415-0

Table 2.

Study design and baseline characteristics of studies reporting humanistic impact of immunoglobulin A nephropathy

Author (year)	Study design	Country	Year range for data collection	Measures reported	Inclusion criteria	Study population and patient characteristics
Marsh et al. (2021) [18]	Patient preference elicitation study	USA and China	NR	An interview-based swing weighting approach to assess patient preference elicitation	To be eligible, participants had to be ≥ 18 years of age at the time of consent, self-report having biopsy-verified primary IgAN, currently receiving ACEi/ARBs for at least 6 months, and be fluent in English (in the USA) or Mandarin (in China)	Population USA, n = 25; China, n = 15 Mean age: 41.6 years Race/ethnicity (US population): 68% Caucasian; 16% Latino; 12% Black/African American; 4% Asian Sex: 32.5% male; 67.5% female
Mizerska-Wasiak et al. (2021) [19]	Multicenter cross-sectional study	Poland	2000–2015	Kidscreen-52 questionnaire The Anger Expression Scale The Personal Competence (KompOs) Scale	Patient age ≥ 8 years, no disease exacerbation during the last 3 months, and written informed consent for study participation	Population: n = 51 Mean age: 15.5 years Mean duration of IgAN: 5 years Patients with hematuria/proteinuria: 76.5%
Zhao et al. (2020) [20]	Prospective observational	China	2013–2018	The Beck Depression Inventory-II (BDI-II) Eysenck Personality Questionnaire (EPQ) Quality of Life Index (QLI) Life Satisfaction Index (LSI) Short Form-36 (SF-36)	(1) Adults (age > 18 years); (2) patients who were diagnosed with IgAN on renal biopsy; and (3) Beck Depression Inventory-II (BDI-II) score > 14	Population: Physical activity (PA), n = 108; no intervention (NI) n = 108 Mean age: PA: 56.1 years; NI: 58.1 years Sex: PA: 62% female; NI: 58.3% female Receiving dialysis: PA: 35.2%; NI: 38.9%

Author (year)

Study design

Country

Year range for data collection

Measures reported

Inclusion criteria

Study population and patient characteristics

Marsh et al. (2021) [18]

Patient preference elicitation study

USA and China

An interview-based swing weighting approach to assess patient preference elicitation

To be eligible, participants had to be ≥ 18 years of age at the time of consent, self-report having biopsy-verified primary IgAN, currently receiving ACEi/ARBs for at least 6 months, and be fluent in English (in the USA) or Mandarin (in China)

Population

USA, n = 25; China, n = 15

Mean age:

41.6 years

Race/ethnicity (US population):

68% Caucasian; 16% Latino; 12% Black/African American; 4% Asian

Sex:

32.5% male; 67.5% female

Mizerska-Wasiak et al. (2021) [19]

Multicenter cross-sectional study

Poland

2000–2015

Kidscreen-52 questionnaire

The Anger Expression Scale

The Personal Competence (KompOs) Scale

Patient age ≥ 8 years, no disease exacerbation during the last 3 months, and written informed consent for study participation

Population:

n = 51

Mean age:

15.5 years

Mean duration of IgAN:

5 years

Patients with hematuria/proteinuria:

76.5%

Zhao et al. (2020) [20]

Prospective observational

China

2013–2018

The Beck Depression Inventory-II (BDI-II)

Eysenck Personality Questionnaire (EPQ)

Quality of Life Index (QLI)

Life Satisfaction Index (LSI)

Short Form-36 (SF-36)

(1) Adults (age > 18 years); (2) patients who were diagnosed with IgAN on renal biopsy; and (3) Beck Depression Inventory-II (BDI-II) score > 14

Population:

Physical activity (PA), n = 108; no intervention (NI) n = 108

Mean age:

PA: 56.1 years; NI: 58.1 years

Sex:

PA: 62% female; NI: 58.3% female

Receiving dialysis:

PA: 35.2%; NI: 38.9%

NR not reported, ACEi/ARBs angiotensin-converting enzyme inhibitors/ angiotensin receptor blockers, GN glomerulonephritis, BC British Columbia, HRU healthcare resource use, ESKD end-stage kidney disease