Table 2:
Preferred messages and modes
| All Sites (N=70), N (%) | Probands (N=31) N (%) | Relatives (N=39) N (%) | ||||
|---|---|---|---|---|---|---|
| Preferred messages | ||||||
| Genetic testing is free to family members for 90 days after the ovarian cancer patient is tested. | 42 | 60% | 22 | 71% | 20 | 51% |
| Ovarian cancer runs in families. | 37 | 53% | 19 | 61% | 18 | 47% |
| If you have a genetic variant (change) that increases your ovarian cancer risk, doctors can help. You may be offered cancer screening or prevention options. | 31 | 44% | 19 | 61% | 12 | 31% |
| Genetic testing can find gene variants (changes) that increase your risk of ovarian cancer. | 31 | 44% | 12 | 39% | 19 | 49% |
| If someone in your family ever had ovarian cancer, genetic testing can help other family members. It can help even if the person had ovarian cancer a long time ago. | 29 | 41% | 13 | 42% | 16 | 41% |
| A genetic counselor can talk with you. The counselor can explain genetic testing and answer your questions. | 26 | 37% | 12 | 39% | 14 | 36% |
| People with ovarian cancer and their family members should get genetic testing. A genetic counselor can tell you which family members need genetic testing. | 23 | 33% | 13 | 42% | 10 | 26% |
| Your privacy will be protected. | 21 | 30% | 8 | 26% | 13 | 33% |
| Ovarian cancer is severe | 19 | 27% | 8 | 26% | 11 | 28% |
| If you have a mother or sister with ovarian cancer, this means you have a “family history” of ovarian cancer. Your chance of getting ovarian cancer is higher than the average person if you have this family history. About 5 in 100 women with family history will develop ovarian cancer during their life. (Relatives only) | 17 | 24% | N/A | N/A | 17 | 44% |
| When you get your genetic test results, a doctor may suggest your relatives also get genetic testing. This is called cascade testing | 16 | 23% | 9 | 29% | 7 | 18% |
| If you had genetic testing before 2014, you may need a newer genetic test | 15 | 21% | 11 | 35% | 4 | 10% |
| Your risk is highest if your mother or sister with ovarian cancer has a genetic link (variant) that caused their cancer. (Relatives only) | 15 | 21% | N/A | N/A | 15 | 38% |
| It is important that your family members get genetic testing also. This is important even if you do not get genetic testing. | 12 | 17% | 5 | 16% | 7 | 18% |
| Please talk with a genetic counselor. The genetic counselor can tell you if you need genetic testing, | 10 | 14% | 3 | 10% | 7 | 18% |
| Preferred modes | ||||||
| Clinician communication | ||||||
| Doctor - in person | 64 | 91% | 29 | 94% | 35 | 90% |
| Doctor - phone | 41 | 59% | 22 | 71% | 19 | 49% |
| Directed communication | ||||||
| Patient portal | 32 | 46% | 11 | 35% | 21 | 54% |
| Video | 30 | 43% | 12 | 39% | 18 | 46% |
| Letter to proband | 26 | 37% | 16 | 52% | 10 | 26% |
| Letter to family | 20 | 29% | 2 | 6% | 18 | 46% |
| Infographic | 20 | 29% | 9 | 29% | 11 | 28% |
| Text message | 19 | 27% | 7 | 23% | 12 | 31% |
| Passive communication | ||||||
| Poster - waiting room | 39 | 56% | 18 | 58% | 21 | 54% |
| Screensaver - waiting room | 24 | 34% | 10 | 32% | 14 | 36% |
| Ad (TV) | 17 | 24% | N/A | N/A | 17 | 44% |
| Ad (online) | 12 | 17% | N/A | N/A | 12 | 31% |
| Ad (radio) | 12 | 17% | N/A | N/A | 12 | 31% |
| Public - poster | 9 | 13% | N/A | N/A | 9 | 23% |