Table 1. Questions for online focus groups of families of children with neurodisability.

They will be organized in age groups (0–3, 3–6, 6–12, 12–18 years) of children with neurodisability. Families and children will have a space to express their needs, addressing all aspects that underlie the F-words (function, fitness, family, friends, fun, and future). Children ages 12 to 18 will be invited to participate in the focus groups with their parents or legal tutors. Each of the focus groups will begin with a round of introductions, so that participants can get situated among themselves.

The first two questions will be:  •As a family unit, what needs do you have concerning your child with pathology?  •If you think about the stage of development in which your child is (early childhood, infancy, pre-adolescence, adolescence), in which of the following areas do you detect more needs; Function, Physical form, Family, Friends, Fun, Future?

The third open-ended question will be:  •Focusing on your area of greatest concern, what are your questions and needs in this regard?

In addition, other needs will be asked specifically:  •What other needs do you consider important, but not a priority now?