Table 1.
Child, Caregiver, and Household Demographic Characteristics by Time Spent Coordinating Care
| All CYSHCN (Weighted n = 14,023,598) | No weekly care coordination (Weighted n = 9,250,758) | Up to 1 hour/week (Weighted n = 2,753,648) | 1–4 hours/week (Weighted n = 1,425,050) | > 5 hours/week (Weighted n = 216,835) | p-value | |
|---|---|---|---|---|---|---|
| Child Age | ||||||
| 0–5 Years | 17.6% (16.6–18.8) |
16.2% (15.0–17.6) |
17.8% (15.6–20.1) |
23.9% (19.7–28.6) |
25.9% (18.4–35.1) |
<0.001 |
| 6–11 Years | 37.4% (36.2–38.8) |
38.2% (36.6–39.8) |
35.8% (33.3–38.4) |
35.3% (31.1–39.8) |
38.0% (29.9–47.0) |
|
| 12–17 Years | 44.9% (43.6–46.2) |
45.6% (43.9–47.2) |
46.4% (43.9–49.0) |
40.8% (36.0–45.8) |
36.1% (27.3–46.0) |
|
| Child Race and Ethnicity | ||||||
| Black | 16.2% (15.1–17.3) |
16.5% (15.2–17.8) |
13.0% (11.0–15.3) |
18.5% (14.9–22.8) |
18.2% (12.8–25.2) |
<0.001 |
| Hispanic | 21.5% (20.1–23.0) |
21.3% (19.5–23.2) |
19.6% (17.1–22.3) |
23.1% (18.1–28.9) |
33.7% (24.0–45.1) |
|
| White | 52.8% (51.4–54.2) |
52.4% (50.7–54.1) |
58.9% (56.1–61.6) |
50.3% (45.5–55.2) |
33.4% (26.6–40.9) |
|
| Multi-racial / Other | 9.5% (8.8–10.3) |
9.8% (8.9–10.7) |
8.6% (7.3–10.0) |
8.1% (6.4–10.2) |
14.7% (9.6 −21.7) |
|
| Child Insurance Status | ||||||
| Public | 37.3% (35.9–38.7) |
36.2% (34.5–38.0) |
35.1% (32.4–37.8) |
43.5% (38.7–48.5) |
50.0% (40.7–59.3) |
<0.001 |
| Private | 50.7% (49.4–52.1) |
53.4% (51.7–55.1) |
52.6% (49.9–55.3) |
39.6% (34.9–44.4) |
22.9% (16.3–31.0) |
|
| Public and Private | 8.0% (7.3–8.8) |
6.2% (5.5–7.0) |
9.2% (7.6–11.0) |
14.9% (11.5–19.1) |
15.9% (10.7–22.9) |
|
| Uninsured | 4.0% (3.4–4.6) |
4.2% (3.4–5.0) |
3.1% (2.3–4.3) |
2.0% (1.4–2.9) |
11.2% (6.8–17.8) |
|
| Highest Level of Caregiver Education | ||||||
| Less than high school | 7.2% (6.2–8.2) |
7.5% (6.3–9.0) |
4.9% (3.6–6.7) |
6.5% (4.3–9.6) |
11.8% (6.7–19.9) |
0.007 |
| High school or GED | 20.5% (19.3–21.8) |
21.4% (19.8–23.0) |
17.8% (15.7–20.3) |
19.7% (15.6–24.5) |
18.3% (13.4–24.5) |
|
| Some college or technical school | 24.3% (23.1–25.4) |
24.1% (22.8–25.5) |
23.4% (21.2–25.7) |
26.0% (22.0–30.4) |
28.9% (21.6–37.4) |
|
| College degree or more | 48.1% (46.7–49.4) |
47.0% (45.4–48.6) |
53.8% (51.2–56.5) |
47.8% (43.0–52.7) |
41.0% (31.7–50.9) |
|
| Primary Household Language | ||||||
| English | 92.5% (91.5–93.4) |
92.2% (90.8–93.4) |
94.4% (92.5–95.8) |
92.6% (89.1–95.1) |
88.0% (81.7–92.3) |
0.063 |
| Non-English | 7.5% (6.6–8.5) |
7.8% (6.6–9.2) |
5.6% (4.2–7.4) |
7.4% (4.9–10.9) |
12.0% (7.7–18.3) |
|
| Household Income as a Percentage of the Federal Poverty Level (FPL) | ||||||
| 0–99% FPL | 22.1% (20.8–23.4) |
21.3% (19.8–22.8) |
23.2% (18.7–27.8) |
34.2% (14.9–53.6) |
38.9% (29.6–49.0) |
<0.001 |
| 100–199% FPL | 22.3% (21.1–23.5) |
22.9% (21.4–24.4) |
18.7% (16.9–20.7) |
25.4% (21.3–29.9) |
22.8% (15.2–31.1) |
|
| 200–399% FPL | 26.5% (25.4–27.6) |
26.8% (25.5–28.2) |
26.1% (24.1–28.3) |
25.7% (22.3–31.6) |
20.5% (14.2–28.5) |
|
| > 400% FPL | 29.1% (28.0–30.3) |
29.1% (27.7–30.5) |
34.0% (31.7–36.4) |
24.9% (21.5–28.5) |
17.8% (13.1–23.8) |
|
Percentages reflect the proportion in each column. Values in parentheses indicate 95% confidence intervals for the corresponding proportion. This analysis was restricted to the 24,041 CYSHCN included in the 2018–2020 NSCH. Weighted sample sizes are shown in the top row. All percentages and sample sizes above are weighted to represent the US population of CYSHCN ages 0–17, using NSCH survey weights. Column 1 represents all CYSHCN, while columns 2–5 represent the subset of CYSHCN whose caregivers spent no weekly time on care coordination, up to 1 hour/week, 1–4 hours/week, or > 5 hours/week.