Table 3.

Participant Menstrual Characteristics

Characteristics	Pooled (n = 98)	Dialysis (n = 20)	Nondialysis CKD (n = 59)	Transplant (n = 19)
Menarche n (%)
Experienced menarche	88 (90)	18 (90)	52 (88)	18 (95)
Age of menarche (y)	14 ± 0.5a	15 ± 2b	13 ± 0c	13 ± 1b
Primary amenorrhea	2 (2)	1 (5)	1 (2)	0 (0)
Unsure	8 (8)	1 (5)	6 (10)	1 (5)
Menstruation n (%)
Current menstrual cycles	77 (79)	14 (70)	49 (83)	14 (74)
Secondary amenorrhea	19 (19)	5 (25)	9 (15)	5 (26)
Skipped question	2 (2)	1 (5)	1 (2)	0 (0)
Menopause n (%)
Yes	8 (42)d	2 (40)e	3 (33)f	3 (60)e
Median (IQR) age of last menstrual period (y)	40 (35-43)g	39 (35-43)h	41 (0-0)i	39 (15-49)j
No	10 (53)d	2 (40)e	6 (67)f	2 (40)e
Skipped question	1 (5)d	1 (20)e	0 (0)f	0 (0)e
Menstruation stopped and then returned n (%)
Yes	6 (6)	6 (30)	N/A	N/A
Due to transplant	1 (14)k	1 (14)k	N/A	N/A
Due to nocturnal HD	1 (14)k	1 (14)k	N/A	N/A
Other reasons	3 (43)k	3 (43)k	N/A	N/A
Unsure	2 (29)k	2 (29)k	N/A	N/A
No	12 (12)	12 (60)	N/A	N/A
Unsure, skipped question	80 (82)	2 (10)	59 (100)	19 (100)
Learned about menstruation and CKD from n (%)l
Books, magazines, or newspapers	38 (39)	6 (30)	31 (53)	1 (5)
Educational websites	58 (59)	10 (50)	36 (61)	12 (63)
Movies, podcasts, radio, or television	11 (11)	0 (0)	10 (17)	1 (5)
Nephrologist	51 (52)	13 (65)	32 (54)	6 (32)
Other health care providers	9 (9)	2 (10)	5 (8)	2 (11)
Other people living with CKD	17 (17)	3 (15)	6 (10)	8 (42)
Social media	47 (48)	7 (35)	35 (59)	5 (26)
Nowhere	5 (5)	1 (5)	2 (3)	2 (11)

Note: Values are means ± SEM where relevant.

Abbreviations: CKD, chronic kidney disease; HD, hemodialysis; IQR, interquartile range.

^a88 responses included.

^b18 responses included.

^c52 responses included.

^d19 responses included.

^e5 responses included.

^f9 response included.

^g6 responses included.

^h2 responses included.

ⁱ1 response included.

^j3 responses included.

^k7 responses included.

^lNumbers add up to more than 100% as participants were able to submit multiple responses.