Table 2.

Descriptive Statistics for Primary Outcome Variables

	Survivor Report M (SD)	Survivor Clinical Elevation (n, %)	Caregiver Report M (SD)	Caregiver Clinical Elevation (n, %)	ICC	ICC Classification
Anxiety (PROMIS)	-	22 (55)	53.50 (9.44)	21 (45)	0.78	Good
Depression (PROMIS)	-	13 (33)	49.19 (9.88)	16 (34)	0.76	Good
Physical function/mobility (PROMIS)	-	20 (50)	47.72 (9.90)	17 (36)	0.83	Good
Fatigue (PROMIS)	-	13 (33)	49.06 (9.64)	10 (21)	0.73	Moderate
Pain interference (PROMIS)	-	20 (50)	48.22 (7.47)	11 (23)	0.72	Moderate
Social roles/ peer relationships	-	20 (50)	49.56 (10.15)	15 (32)	0.40	Poor
Global QOL (PROMIS)	-	-	48.84 (8.40)	-	0.77	Good
Primary caregiver warmth (CRPBI/PBI)	26.97 (2.91)	-	27.00 (2.92)	-	0.11	Poor
Primary caregiver psychological control (CRPBI/PBI)	16.33 (4.47)	-	13.17 (3.05)	-	0.63	Moderate
Secondary caregiver warmth/acceptance (CRPBI/PBI)	25.40 (4.67)	-	-	-	-	-
Secondary caregiver psychological control (CRPBI/PBI)	14.94 (4.93)	-	-	-	-	-
Family functioning (FAD-GF)	1.77 (0.47)	-	1.65 (0.38)	-	0.57	Moderate

Notes. PROMIS, Patient Reported Outcomes Measurement System; CRPBI, Children’s Report of Parent Behavior Inventory; PBI, Parenting Behaviors Inventory; FAD, Family Assessment Device; PROMIS subscales are presented as T-scores (M = 50, SD = 10), with higher quality of life (QOL) indicative of higher of the construct presented; Global QOL is presented as the sum of raw scores (range 12–60), with higher scores indicative of higher QOL; Clinical elevation for the PROMIS includes mild, moderate or severe difficulties on T-score of PROMIS and FAD-GF scores ≥ 2; An ICC of below.50 indicates poor agreement; an ICC of 0.50–0.75 indicates moderate agreement; an ICC of 0.75–0.90 indicates good agreement; and an ICC of 0.90–1.00 indicates excellent agreement (Koo and Li, 2016).