Table 2.
Participant demographics
| Adolescents JIA (n = 9) | Parents JIA (n = 9) | Adolescents cSLE (n = 5) | Parents cSLE (n = 5) | Clinicians G1 (n = 7) | Clinicians G2 (n = 5) | |
|---|---|---|---|---|---|---|
| Female | 3 | 7 | 5 | 4 | 5 | 4 |
| Age (mean) | 14.6 | 43 | 15.6 | 44 | 45.7 | 45.4 |
| Asian, not Hispanic or Latinoa | 0 | 0 | 0 | 0 | 3 | 1 |
| Black or African American, not Hispanic or Latinoa | 1 | 1 | 4 | 4 | 0 | 1 |
| White, not Hispanic or Latinoa | 8 | 8 | 1 | 1 | 4 | 3 |
| PROMIS pediatric mobility score mean (range) | 37.0 (27.8–58.5) | |||||
| PROMIS pediatric anxiety score mean (range) | 53.5 (33.5–67.6) | 54.5 (47.0–63.2) | ||||
| PROMIS pediatric fatigue score mean (range) | 55.0 (38.3–82.6) | 60.4 (52.7–68.3) | ||||
| PROMIS pediatric depressive symptoms score mean (range) | 56.4 (47.7–61.0) | |||||
| Mean years practicing pediatric rheumatology | 13.1 | 14.3 |
a
No participants reported Hispanic ethnicity