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. 2023 Jul 29;12:224. doi: 10.4103/jehp.jehp_1010_22

Table 3.

Themes, sub-themes, and mini-units

Mini-units Sub-themes Themes
Like wearing a dress, living with a disease is not a 2- or 3-day disease, I will burn and die with this disease, the disease has no final date, the chronicity of the disease, exhausting mental pressure, being exhausting, continuous physical disability, fatigue, pain, suffering Like a nightmare Permanent suffering
Desperation, meltdown bit by bit, to be incurable To give up
Communication deprivation, emotional deprivation, social deprivation Deprivation Like a bird in a cage
Disability at a young age, poverty Limitation
To be ignored, to leave the world (recluse), to be isolated, to be humiliated, to be worthless, to have low self-esteem, to be pushed out of society, to be pushed to the sidelines, family support diminishing, government support diminishing, to be shy, to be disillusioned, heartbreak Worthlessness Rejection
Being pointed out in the society, being strange to people, taffeta separate, as if I came from the moon, being different from others. Being stigmatized
It is impossible to see the achievement of dreams, to have a vague future, to have a dark future, to have nothing but a black future, not to have a future for yourself. Dark vision Immersion in the whirlpool of thoughts
Humiliation, confusion from the pain of the times, astonishment from the bad behavior of the society Confusion
Regretting, losing dreams Continuous regret Losing the feeling of life
Feeling ugly, being a black fish in an ocean of beautiful fish, feeling like an ugly fish among beautiful fish, a second-class citizen, being ashamed. Inferiority feeling