Table 3.
Themes, sub-themes, and mini-units
Mini-units | Sub-themes | Themes |
---|---|---|
Like wearing a dress, living with a disease is not a 2- or 3-day disease, I will burn and die with this disease, the disease has no final date, the chronicity of the disease, exhausting mental pressure, being exhausting, continuous physical disability, fatigue, pain, suffering | Like a nightmare | Permanent suffering |
Desperation, meltdown bit by bit, to be incurable | To give up | |
Communication deprivation, emotional deprivation, social deprivation | Deprivation | Like a bird in a cage |
Disability at a young age, poverty | Limitation | |
To be ignored, to leave the world (recluse), to be isolated, to be humiliated, to be worthless, to have low self-esteem, to be pushed out of society, to be pushed to the sidelines, family support diminishing, government support diminishing, to be shy, to be disillusioned, heartbreak | Worthlessness | Rejection |
Being pointed out in the society, being strange to people, taffeta separate, as if I came from the moon, being different from others. | Being stigmatized | |
It is impossible to see the achievement of dreams, to have a vague future, to have a dark future, to have nothing but a black future, not to have a future for yourself. | Dark vision | Immersion in the whirlpool of thoughts |
Humiliation, confusion from the pain of the times, astonishment from the bad behavior of the society | Confusion | |
Regretting, losing dreams | Continuous regret | Losing the feeling of life |
Feeling ugly, being a black fish in an ocean of beautiful fish, feeling like an ugly fish among beautiful fish, a second-class citizen, being ashamed. | Inferiority feeling |