TABLE 2.

Perceived current or potential impact of the CFLN

Theme	Illustrative quote
Learning community focused on QI	“The centers that are part of the CFLN create areas of focus on pertinent patient outcomes that really revolve more around the delivery of care. And whether that's telehealth, quality of life initiative, recognizing exacerbations earlier. Those were all things that people might have been doing at one center, but within the Learning Network, it allowed multiple centers to come together. And when you have multiple centers working together, it allows you to be able to see the differences and you have the power of the population behind you at that point.”—Physician leader, #16 “Having the local experience helps the network, having the network experience helps the local team.”—Physician leader, #19
Culture of coproduction	“Our crowning jewel is co‐production at the team level. We've been able to really help our patient and family partners not just be advisors, but to be designers, to be leaders.”—CFLN staff, #4 “Coproduction is probably what's been the biggest change for us. […] the concept of coproduction has been very small scale at our clinic. But it's such a central feature to the Learning Network. That value has really started infusing throughout the clinic for us.”—QIL, #13
Improving process and outcome measures	“Improving patient's care, improving their quality of life. And for me personally, that's been very gratifying because I see those outcomes. It's not like I'm reading about them or hoping for them to happen. I see the actual outcomes because after the project is over and we are implementing them, it's sustained.”—PFP, #14 “A successful CFLN would lead to improved health‐related quality of life, enhanced relationships between patients and care teams, enhanced relationships among care team staff, and improved health equity within our community.” QIL, #8
Spread of best practices	“Having the number of centers we have in the CFLN is wonderful, but I feel like the CFLN is not successful until we have made changes to care across all centers… I think there needs to be some dissemination throughout the entire network, not just network, but community for CF patients.”—QIL, #23 “What we learn and what we adapt should not be for the 33 teams of the CF learning network, we need to really spread that to the rest of the care center network. And, that could be adding more teams, but to be honest it has to then be in some way we spread these tools and techniques in a national commons, in a national resource.”—Physician leader #19