Table 2.
Analytic codebook of this study after a 3-step testing procedure
| Topical code and secondary code | Definition | ||
| Other caregiving challenges | |||
|
|
Caregiving challenges | Any other challenges that caregivers face and do not specifically belong in challenges related to older adult living, financial, and legal services for the care recipient | |
| Living arrangements | |||
|
|
Had living arrangement challenges | Challenges regarding living arrangements (eg, nursing homes, assisted living, home care, hospice, and postacute care placement) for the care recipient | |
|
|
No challenges regarding living arrangements | Statement that living arrangements were simple in their case or description of the ease of living arrangement for the care recipient | |
|
|
Services used for living arrangements | Services, professionals, businesses, and facilities that a caregiver used to secure living arrangements for the care recipient | |
|
|
Factors for identification and selection | Factors (eg, cost, location, quality, and referral) that influenced identifying and selecting living facilities or at-home care agencies for the care recipient | |
|
|
Other | Any other information that was related to older adult living for the care recipient but did not fall into other existing codes | |
| Financial | |||
|
|
Had financial challenges | Any stated challenges regarding the financial aspects of arranging care for a care recipient (eg, paying for care, accessing finances, and working with financial consultants) | |
|
|
No financial challenges | The participant stated that financial considerations for their caregiving experience were simple or not challenging for them. Description of the ease of arrangement of the financial situation of the care recipient. | |
|
|
Financial services used | Services, professionals, businesses, and consultants that a caregiver used to navigate any financial responsibilities associated with caring for a care recipient | |
|
|
Consulted financial professionals | The participant consulted financial professionals to help them navigate financial aspects of older adult care for the care recipient. | |
|
|
Did not consult financial professionals | The participant did not consult financial professionals to help them navigate financial aspects of older adult care for the care recipient. | |
|
|
Awareness of benefits and other support | Whether the participant was aware of any additional support or any available social benefits to help pay for care or navigate the financial aspects of caregiving | |
|
|
Other | Any other information that was related to the financial aspects of older adult care for the care recipient but did not fall into other existing codes | |
| Legal | |||
|
|
Had legal challenges | Any stated challenges regarding the legal aspects of arranging care for the care recipient | |
|
|
No legal challenges | Description of the ease of arrangement of the legal situation of the care recipient | |
|
|
Consulted legal professionals | Confirmation of having consulted legal professionals to help them navigate the legal aspect of older adult care for the care recipient | |
|
|
Did not consult legal professionals | Confirmation of having not consulted any legal professionals to help them navigate the legal aspect of older adult care for the care recipient. | |
|
|
Advanced directives | The participant’s comments or experiences with setting up advanced directives for the care recipient (advanced directives include 3 categories: living will, power of attorney, and health care proxy) | |
|
|
Other | Any other information that was related to the legal aspect of older adult care for the care recipient but did not fall into other existing codes | |
| Caregiver support group | |||
|
|
Used caregiver support groups | Confirmation that the participant used or participated in any caregiver support groups | |
|
|
Did not use caregiver support groups | Confirmation that the participant did not use or participate in any caregiver support groups | |
| Educational resources | |||
|
|
Educational resources that caregivers used in the past | Any educational topics or resources that participants had used in the past | |
| Expected features of a platform | |||
|
|
Education | The need for education materials, classes, programs, and peer-reviewed research evidence about caregiving for people living with dementia | |
|
|
Caregiver support group | The need for support groups or forums to connect with other caregivers of people living with dementia | |
|
|
Communication with health providers about care recipient’s condition | Timely communication with health care providers to ask questions about the care recipient’s condition | |
|
|
Information or database to find facilities, providers, or services | Obtaining information to find trustworthy facilities, providers, and services for care recipients | |
|
|
Mental health support for caregivers | The need for mental health support features of the digital platform, such as stress or anxiety management, affirmation techniques, or communication with mental health care providers about their own mental health | |
|
|
Task-based notifications or reminders | The need for task-based notifications or reminders, such as taking medication, submitting paperwork, and scheduling appointments | |
|
|
Quality of the platform | Any other qualities or ideal aspects of a web-based platform that should be included | |
|
|
Other | Other features that participants need that should be included in a web-based platform that did not fall into other existing codes | |