Table 3.
Broad theme | Subthemes | Examples (slightly paraphrased to prevent identification of users and ensure ease of reading) |
Misinformation regarding the “cure” for PCOSa | cure, cured, curing, cleaner | While some people mentioned that there is no permanent cure for PCOS, most of the examples were either related to suggesting untested natural cures, buying courses, or contacting other people who will provide a cure. Direct examples are not listed here to prevent sharing identifying information. |
Natural remedies | herb, herbal, herbalist, natural, Ayurveda, ginger | “Is it okay to consume orange tea and flaxseeds before bedtime? Also, if I incorporate all nine of these items, will it lead to a permanent cure for my PCOS, or could it recur? Nevertheless, I appreciate this video – it’s going to be beneficial for me.” “Find a cure for PCOS by strictly adhering to the Alkaline Diet!” |
Fake/spam patient testimonies | search, YouTube, Google, WhatsApp, contact | Various commenters presented themselves as patients and spammed the same comments on multiple videos on how they had been affected by PCOS for multiple years and that when they contacted a spammer, the spammer miraculously treated their PCOS, and now they are living happily and also able to conceive. Then they provided all the contact details of the spammer. Direct examples are not listed here to prevent sharing identifying information. |
Treatment | medication, supplement, recovery, remedies, secret | “I’m watching this because my soon-to-be wife has this condition, and I want to learn how to support her effectively. We’re currently exploring the use of supplements.” “My wife has been dealing with hirsutism, which results in unwanted hair growth. Even though I was understanding, it still affected her confidence negatively. To restore her happiness, I started researching solutions and got in touch with an herbal practitioner.” |
Sharing perspectives of female family members | sister, girlfriend, wife, relationship | “Appreciate your input, doctor. My wife is going through a similar situation. Despite our efforts, we’ve been struggling to conceive. This is causing considerable anxiety and stress for me.” “This was a challenging period for me; my relationship was in jeopardy.” |
aPCOS: polycystic ovary syndrome.