Table 1.
Participant demographics
| Participant Characteristic | No. (%) |
|---|---|
| Median Age in Years (IQR) | 22.5 (19-28) |
| Self-Reported Race | |
| Asian | 1 (5) |
| Black/African American | 2 (10) |
| Other | 5 (25) |
| White | 12 (60) |
| Self-Reported Ethnicity | |
| Hispanic or Latino | 5 (25) |
| Not Hispanic or Latino | 15 (75) |
| Type of Spina Bifida | |
| Myelomeningocele | 16 (80) |
| Lipomyelomeningocele | 4 (20) |
| Romantically Interested in | |
| Women | 17 (85) |
| Men | 0 (0) |
| Both | 2 (10) |
| Unsure | 1 (5) |
| Currently in a relationship? | |
| Yes | 6 (30) |
| No | 14 (70) |
| Previously in a relationship? | |
| Yes | 10 (50) |
| No | 10 (50) |
| Currently Sexually Active? | |
| Yes | 7 (35) |
| No | 13 (65) |
| Previously Sexually Active? | |
| Yes | 11 (55) |
| No | 9 (45) |
| Shunted Hydrocephalus? | |
| Yes | 15 (75) |
| No | 5 (25) |
| Primary Bladder Management | |
| CIC per urethra | 15 (75) |
| CIC per catheterizable channel | 5 (25) |
| Assistive Devices for Ambulationa | |
| AFOs | 7 (35) |
| Crutches or Braces | 8 (40) |
| Wheelchair for distance | 5 (25) |
| Wheelchair | 5 (25) |
| Living Situation | |
| Living Alone | 0 (0) |
| Living with Parents | 13 (65) |
| Living with other family members | 2 (10) |
| Living with partner | 3 (15) |
| Living with room mates | 1 (5) |
| Otherb | 1 (5) |
| Do you have children? | |
| Yes | 0 (0) |
| No | 20 (100) |
a.
Several reported use of multiple devices
b.
College dorm