Table 4.
QoL assessment in SBS/CIF patients
| Instrument | Dimensions, mean score ± SD | Adults (n = 11) | Portuguese adult norm (n = 1,500) [18] | |||
|---|---|---|---|---|---|---|
| SF-36v2 | Physical functioning | 62.3±30.0 | 80.2±24.7 | |||
| Role physical | 61.9±34.1 | 78.4±25.6 | ||||
| Bodily pain | 62.4±33.6 | 71.4±24.3 | ||||
| General health | 49.8±29.1 | 59.6±15.4 | ||||
| Vitality | 56.9±25.1 | 63.0±23.1 | ||||
| Social functioning | 65.9±28.0 | 80.0±23.4 | ||||
| Role emotional | 62.1±35.2 | 79.8±24.7 | ||||
| Mental health | 68.5±23.9 | 73.0±23.3 | ||||
| Instrument | Dimension mean score ± SD | Children (n = 13) | Parent's proxy (n = 19) | Portuguese children norm |
||
|---|---|---|---|---|---|---|
| children |
parent proxy |
|||||
| 8–12 years (n = 381) [17] | 5–12 years (n = 179) [19]* | 5–12 years (n = 97) [19]* | ||||
| PedsQL™ | Psychosocial health | 71.1±10.8 | 73.6±12.2 | 78.2±12.9 | 74.5±12.8 | 69.6±15.2 |
| Emotional functioning | 72.1±12.9 | 74.5±15.7 | 73.3±16.7 | 71.8±17.4 | 65.8±18.4 | |
| Social functioning | 79.6±19.9 | 78.5±17.7 | 84.6±15.1 | 79.1±16.8 | 75.9±20.8 | |
| School functioning | 57.5±18.1 | 58.1±15.8 | 78.2±15.9 | 72.6±16.2 | 65.9±18.2 | |
| Physical functioning | 77.4±13.9 | 67.4±24.8 | 83.5±14.8 | 77.8±19.1 | 68.7±22.4 | |
| Total score | 73.3±11.0 | 71.3±17.3 | 79.8±12.1 | 75.6±13.5 | 69.0±16.4 | |
PedsQL, Pediatric Quality of Life Inventory; SF-36v2, Short Form-36 version 2.
*
Reported the average weighted scores for the overall population, considering published stratified norm data per children age-group (5–7 years and 8–12 years).