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. 2023 Sep 9;15(18):4485. doi: 10.3390/cancers15184485

Table 4.

Quotes demonstrating overall satisfaction with the Family Gene Toolkit.

Topic Question Quotes from “Think Aloud” Interviews
Content How did you like the content of the Family Gene Toolkit? “I’d like to show it to my son…there is a lot of information about men.”
“I had no idea that there are medications that could reduce cancer risk.”
“I found the quiz really helpful; it helps the information to stick in my mind.”
Missing information Is there any information that you needed but it was not addressed? “I would like to find more information about my personal cancer risk. And a specific risk estimate.…That would be more helpful for me.“
Timing of intervention When do you think is the best time to deliver this information? “I wish I had this intervention before I even started thinking about genetic testing and dealing with my cancer risk.”
“I think this intervention would be more helpful when someone is just being diagnosed with the mutation.”
Navigation How easy or difficult was it to navigate the web application? “I expected that clicking on the arrow would take me back to the main menu, but it didn’t. It was not clear to me what this ‘home’ button was.”
“The quizzes are very nice, but I would also like to have a detailed explanation when I selected the correct answer.”
(This comment was addressed in subsequent interviews.)
“It was not clear that I could find more links and see more stories when I clicked on words that were blue and bold.”
Overall satisfaction Overall, what do you think about the information covered in the Family Gene Toolkit? “The intervention is very well-done, with clear and comprehensive information, and made me feel that I want to read more.”
“It contains everything and exhausted all the information.”
“Overall, I think the intervention is nice, has beautiful pictures, and is user-friendly. I had no trouble navigating through and finding what I needed.”
Overall, was there something that you did not like? “The intervention was very informative and well-structured, but I feel that this is very long.”
“I think it would be stressful for some people to get this information. Maybe the intervention needs some more positive content.”
“I felt burdoned to tell my relatives. To me, it was hard to share results with my family members.”

Italics present excerpts from narrative data demonstrating participants’ perceptions about the Family Gene Toolkit.