Table 4.
Topic | Question | Quotes from “Think Aloud” Interviews |
---|---|---|
Content | How did you like the content of the Family Gene Toolkit? | “I’d like to show it to my son…there is a lot of information about men.” |
“I had no idea that there are medications that could reduce cancer risk.” | ||
“I found the quiz really helpful; it helps the information to stick in my mind.” | ||
Missing information | Is there any information that you needed but it was not addressed? | “I would like to find more information about my personal cancer risk. And a specific risk estimate.…That would be more helpful for me.“ |
Timing of intervention | When do you think is the best time to deliver this information? | “I wish I had this intervention before I even started thinking about genetic testing and dealing with my cancer risk.” |
“I think this intervention would be more helpful when someone is just being diagnosed with the mutation.” | ||
Navigation | How easy or difficult was it to navigate the web application? | “I expected that clicking on the arrow would take me back to the main menu, but it didn’t. It was not clear to me what this ‘home’ button was.” |
“The quizzes are very nice, but I would also like to have a detailed explanation when I selected the correct answer.” (This comment was addressed in subsequent interviews.) | ||
“It was not clear that I could find more links and see more stories when I clicked on words that were blue and bold.” | ||
Overall satisfaction | Overall, what do you think about the information covered in the Family Gene Toolkit? | “The intervention is very well-done, with clear and comprehensive information, and made me feel that I want to read more.” |
“It contains everything and exhausted all the information.” | ||
“Overall, I think the intervention is nice, has beautiful pictures, and is user-friendly. I had no trouble navigating through and finding what I needed.” | ||
Overall, was there something that you did not like? | “The intervention was very informative and well-structured, but I feel that this is very long.” | |
“I think it would be stressful for some people to get this information. Maybe the intervention needs some more positive content.” | ||
“I felt burdoned to tell my relatives. To me, it was hard to share results with my family members.” |
Italics present excerpts from narrative data demonstrating participants’ perceptions about the Family Gene Toolkit.