Table 3.
Registries reporting a minority of paediatric patients (33–50%).
| Registry | Scope: Hospital/Regional/National/International (Nation) |
Years Active | Publications (Type of Study) |
Diagnostic Inclusion | Number of Patients in Publication (% of Registry) | Patient Age Range (Years) in Publication (Mean and SD or Median) |
PROMs Used | Frequency of PROM Collection | Risk of Bias (0–9) |
|---|---|---|---|---|---|---|---|---|---|
| Knee Ligament Registries | |||||||||
| New Zealand ACL Registry | National (New Zealand) | 2014–present | Fausett et al. [108] (OC) Rahardja et al. [109] (OC) Tiplady et al. [110] (OC) |
ACLR | 5345 (56%) 1844 1466 |
8–70 (Mean: 28, SD: 10) 15–20 |
KOOS✗ MARS✗ |
Before surgery, after surgery: 6, 12, 24 months | 7 8 8 |
| MOON ACL Database | Regional (USA) | 2002–present | Dunn et al. [111] (OC) |
ACL injury | 525 (78) |
(Mean: 26, SD: 11) | KOOS✗ MARS✗ SF36✗ IKDC✗ RTS✗ |
Before surgery, after surgery: 24 months. | 8 |
| #Failla et al. [112] (CC) |
1995 | (Mean: 24.3, SD: 10) | 8 | ||||||
| #Magnussen et al. [113] (OC) | 713/950 | (Median: 23 IQ: 17–35) | 9 | ||||||
| Mather et al. [114] (OC) |
988 | (Mean: 26, SD: 11) | 8 | ||||||
| Ramkumar et al. [115] (OC) | 3202 (100%) | 8 | |||||||
| Wright et al. [116] (OC) |
273 | 11–54 (Mean: 24, median: 23) | 8 | ||||||
| Hospital ACL Registry | Hospital (Norway) | (PD:1987–1994) | Lindanger et al. [117] (CC) | ACL injury | 14–47 (Mean: 22) | RTS✗ | At follow-up (unspecified) | 9 | |
| Delaware Oslo ACL Registry | International | 2007–2012 | #Failla et al. [112] (CC) | ACL injury | 192 (64%) | 13–60 (Mean: 24.7, SD: 9) |
KOOS✗ IKDC✗ |
Before surgery, after surgery: 24 months. | 8 |
| #Grindem et al. [118] (CC) | 84 | 16–40 (Mean: 25.3, SD: 7.2) |
8 | ||||||
| Hospital ACL Registry | Hospital (USA) | (PD: 2009–2013) | Nwachukwu et al. [119] (OC) Nwachukwu et al. [120] (OC) Nwachukwu et al. [121] (OC) Randsborg et al. [122] (OC) Rauck et al. [123] (CC) |
ACL injury | 231 232 294 2042 (70%) 53/143 |
(Mean: 26.7, SD: 12.5) 13–63 (Mean: 26.7, SD: 12.5) (Mean: 25.5) (Mean: 30, SD: 12) (Mean: 16) |
IKDC✗ Lysholm✗ Tegner✗ MARS✗ SF12✗ RTS✗ |
Before surgery, after surgery: 6,12,24,60 months | 8 |
| 7 | |||||||||
| 7 | |||||||||
| 7 7 | |||||||||
| Swedish ACL Rehab Registry | Regional (Sweden) | 2009–present | Hamrin Senorski et al. [124] (OC) | ACL injury | 157 | 15–30 (Mean: 20, SD: 3) | KOOS✗ Tegner✗ PAS✗ K-SES✗ |
After surgery: 2.5, 4, 8, 12, 18, 24 months | 8 |
| Sundemo et al. [125] (CC) | ACL injury and hypermobility | 356 | 16–50 (Mean: 25.9) | 7 | |||||
| Kaiser Permanente ACLR registry | Regional (USA) | 2005–present | Bojcic et al. [18] (CC) |
ACL injury | 1486 | (Mean: 28, SD: 11) | KOOS✗ | Before surgery, after surgery: 12, 24, 60 months | 8 |
| Inacio et al. [126] (OC) |
ACL injury | 636 | <14–50+ (Mean: 26, IQR: 18.7–36) |
7 | |||||
| Cleveland ACL Registry | Hospital (USA) | (PD: 1991–1999) | Spindler et al. [127] (CC) |
ACL injury | 651 | (Mean: 24, SD: 8) | KOOS✗ WOMAC✗ IKDC✗ |
Once | 8 |
| Multiligament Knee Injury Registry | Hospital (USA) | (PD: 2004–2014) | Woodmass et al. [128] (OC) | Multi-ligament injury | 23 | 15–59 (Mean: 26) | IKDC✗ WOMAC✗ Lysholm✗ |
After surgery: 3, 12, 24 months | 8 |
| Woodmass et al. [129] (OC) | 20 | 16–52 | 8 | ||||||
| International Global Surgical Registry | International | Duerr et al. [130] (OC) |
ACL injury | 287 | 12–60 (Mean: 27 SD: 11.8) |
VAS✓ RAND-HSI✗ MARS✗ KOOS✗ |
Before surgery, after surgery: 12, 24 months. | 7 | |
| Hospital ACL Registry | Hospital (Ireland) | (PD: 2014–2016) | Hurley et al. [131] (OC) |
ACLR | 126 | (Mean: 22.3, SD: 5.2) | MARS✗ IKDC✗ CKRS✗ ACL-RSI✗ |
Before surgery, after surgery: 6, 9, 12, 24 months | 7 |
| Hospital ACL Registry | Hospital (USA) | (PD: 2000–2007 | Barrett et al. [132] (OC) |
ACL rupture | 417 (37%) | 12–59 (Mean: 17/39) |
VAS✓ Lysholm✗ Tegner✗ |
Before surgery, after surgery: 3, 6, 9, 12, 18, 24 months | 7 |
| Hip Preservation Registries | |||||||||
| Hip Arthroscopy Registry | Hospital (USA) | (PD: 2008–2012) | Hartigan et al. [133] (OC) |
Arthroscopy for femoro-acetabular impingement | 78 | 14–39 (Mean: 23) | mHHS✗ NAHS✗ HOS-ADL✓ HOS-SSS✓ VAS✓ |
Before surgery, after surgery: 24 months | 8 |
| ANCHOR PAO Database | Regional (USA) | (PD: 2008–2012) | Stambough et al. [134] (CC) |
PAO | 117 | 9–35 | UCLA✗ HOOS✗ SF12✗ |
Before surgery, after surgery | 8 |
| Hip Resurfacing Database | Hospital (UK) | (PD: 1999–2001) | Maclean et al. [135] (OC) |
Hip resurfacing | 143 | 12–30 (Mean: 21) | OHS✗ | Before surgery, after surgery at 1.5 month intervals until discharge | 8 |
| Hospital Hip Database | Hospital (USA) | (PD: 2013–2017) | Pun et al. [136] (OC) |
Reverse PAO for FAI | 34 | 12–41 | WOMAC✗ mHHS✗ |
Before surgery, after surgery | 7 |
Key: # Study refers to more than one registry, ✓ = PROM validated for age range in study, ✗ = age range of study is outside validated range of PROM, ACL: anterior cruciate ligament, CC: case control study, CKRS: Cincinnati Knee Rating System, HOOS: Hip Disability and Osteoarthritis Outcome Score, HOS-ADL: Hip Outcome Score—Activities of Daily Living, HOS-SSS: Hip Outcome Score—Sport-Specific Subscale, IKDC: International Knee Documentation Committee, KOOS: Knee Injury and Osteoarthritis Outcome Score, K-SES: Knee Self-Efficacy Scale, MARS: Marx Activity Rating Scale, mHHS: Modified Harris Hip Score, NAHS: Non-Arthritic Hip Score, OC: observational cohort study, OHS: Oxford Hip Score, PAS: Physical Activity Scale, PD: published data, RAND-HSI: RAND Health Status Inventory, RTS: Return to Sport Questionnaire, SF12: Short Form-12, SF36: Short Form 36, UCLA: University of California Los Angeles Activity Scale, UK: United Kingdom, USA: United States of America, VAS: Visual Analogue Scale, WOMAC: Western Ontario and McMaster Universities Osteoarthritis Index.