Official websites use .gov
A
.gov website belongs to an official
government organization in the United States.
Secure .gov websites use HTTPS
A lock (
) or https:// means you've safely
connected to the .gov website. Share sensitive
information only on official, secure websites.
Lived experience perspective. Results from an anonymous Survey Monkey questionnaire distributed via email to the member based of Fragile X New Zealand (n = 38). (a) Binary data (blue = yes; gray = no); (b) Preferred terminology by survey respondents; (c,d). Example quotes in response to query about (c) what is helpful in research and (d) what is unhelpful in research.
