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Variables and instruments that will be used to collect the data: individual measures.
| Operationalized as | Measured by | Patients | Parents | Healthcare Professional | Measured at (Months) |
|---|---|---|---|---|---|
| Socio-demographic | Socio-demographic questionnaire | X | X | X | 0 |
| ICUM | Memories | X | |||
| Quality of life (over 18 years) | SF-36 | X | X | 0-3-12 | |
| Depression state | HADS | X | X | 0-3-12 | |
| Anxiety | HADS | X | X | 0-3-12 | |
| Cognitive state | MMSE | X | 0-3-12 |
